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This digital document is an article from Health and Social Work, published by National Association of Social Workers on February 1, 2000. The length of the article is 4460 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: ADOLESCENTS WITH SICKLE CELL DISEASE: Determinants of Support Group Attendance and Satisfaction.
Author: Joseph Telfair
Publication: Health and Social Work (Refereed)
Date: February 1, 2000
Publisher: National Association of Social Workers
Volume: 25Issue: 1Page: 43

Distributed by Thomson Gale ... Read more

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Univ. of West Indies, Jamaica. Reviews the history and many of the recent developments in laboratory studies but retains the perspective of a practicing clinician. Includes useful figures and illustrations. Previous edition: c1992. ... Read more

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Webster's bibliographic and event-based timelines are comprehensive in scope, covering virtually all topics, geographic locations and people. They do so from a linguistic point of view, and in the case of this book, the focus is on "Sickle Cell Disease," including when used in literature (e.g. all authors that might have Sickle Cell Disease in their name). As such, this book represents the largest compilation of timeline events associated with Sickle Cell Disease when it is used in proper noun form. Webster's timelines cover bibliographic citations, patented inventions, as well as non-conventional and alternative meanings which capture ambiguities in usage. These furthermore cover all parts of speech (possessive, institutional usage, geographic usage) and contexts, including pop culture, the arts, social sciences (linguistics, history, geography, economics, sociology, political science), business, computer science, literature, law, medicine, psychology, mathematics, chemistry, physics, biology and other physical sciences. This "data dump" results in a comprehensive set of entries for a bibliographic and/or event-based timeline on the proper name Sickle Cell Disease, since editorial decisions to include or exclude events is purely a linguistic process. The resulting entries are used under license or with permission, used under "fair use" conditions, used in agreement with the original authors, or are in the public domain. ... Read more

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This clinically focused book reviews the current knowledge & practices of transfusing patients with sickle cell disease to assist clinician in understanding the complex role transfusion plays in treatment of this disease. ... Read more

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Written by 80 of the world's foremost basic scientists and clinicians, this volume is the first comprehensive reference on sickle cell disease. Because this disease has diverse manifestations and involves many medical specialties, the contributors were chosen for their expertise in specific areas. Their discussions cover virtually every aspect of the disease--its molecular and cellular biology, pathophysiology, diagnosis, organ-specific complications, and clinical management.Coverage begins with recent laboratory findings on sickle hemoglobin and sickle red cell pathology. Subsequent sections examine the pathophysiology and natural history of sickle cell disease and describe diagnostic methods, including prenatal diagnosis and neonatal screening. A major section focuses on strategies for management of the organ-specific complications and psychosocial aspects of the disease. Coverage of therapy includes antibiotics, transfusion, surgery, pain control, nursing concerns, and future prospects for cure of the disease by gene therapy, bone marrow transplantation, and drugs that induce fetal hemoglobin synthesis. ... Read more

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This special issue reviews the literature on the neuropsychological sequelae and CNS complications of pediatric sickle cell disease while also emphasizing the integration of neuro psychology which is critical for interfacing with these patients. Executive dysfunction related to frontal infarcts, neurocognitive benefit of hydroxyurea, and the influence of illness-related and psychosocial factors on neuropsychological outcomes are described. A controlled replication study of peer relationships and emotional well-being is equally informative about statistical considerations regarding small sample sizes and low-incidence illnesses. The much anticipated adolescent version of the Sickle Cell Self-Efficacy Scale is reported by the test authors.

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AudienceHematologists, molecular biologists, biophysicists, biochemists, pathologists, students, and post doctoral fellows. ... Read more

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Our Little Blessing: A Story About Sickle Cell Disease relates how this potentially devastating medical condition affects the individuals who live with SCD every day. Survivors such as Gigi, the little girl whose story is told here, face daily challenges that demand careful medical care and attention.

This unique work shares how one family has learned to cope with SCD and reflects the courage and determination of the children who grow up with this disease. Our Little Blessing: A Story About Sickle Cell Disease is designed to present a practical and effective introduction to this disease in a clear and accessible format. ... Read more

Customer Reviews (1)

A BLESSED BOOK.
AN ACCURATE AND INFORMATIVE DEPICTION OF SICKLE CELL DISEASE AND ITS EFFECTS. MILLIONS OF FAMILIES DEAL WITH THIS HORRIBLE AFFLICTION DAILY. IT IS MY HOPE THAT THIS BOOK WILL COMFORT THOSE FAMILIES AND PERHAPS BE THE CATALYST NEEDED TO GENERATE MORE RESEARCH.MAY GOD BLESS THE AUTHOR AND HER STORY. ... Read more

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Rapid recognition of acute chest syndrome is essential in patients with sickle cell disease. The condition can be particularly severe in adolescents and adults and often leads to death. In this article, the authors review the challenges of evaluating the syndrome and outline current treatment and supportive care. Yale SH, Nagib N, Guthrie T. Acute chest syndrome in sickle cell disease: crucial considerations in adolescents and adults. Postgrad Med 2000;107(1):215-22 ... Read more