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This book has been created for patients who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells patients where and how to look for information covering virtually all topics related to von hippel-lindau disease (also Angioblastomatosis; Angiomatosis Retinae; Angiophakomatosis retinae et cerebelli; Cerebelloretinal hemangioblastomatosis; Cerebelloretinal hemangioblastomato-sis; Hippel Disease), from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on von hippel-lindau disease. Given patients' increasing sophistication in using the Internet, abundant references to reliable Internet-based resources are provided throughout this sourcebook. Where possible, guidance is provided on how to obtain free-of-charge, primary research results as well as more detailed information via the Internet. E-book and electronic versions of this sourcebook are fully interactive with each of the Internet sites mentioned (clicking on a hyperlink automatically opens your browser to the site indicated). Hard-copy users of this sourcebook can type cited Web addresses directly into their browsers to obtain access to the corresponding sites. In addition to extensive references accessible via the Internet, chapters include glossaries of technical or uncommon terms. ... Read more

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Targeted to patients, their families and allied health students, The “Gale Encyclopedia of Neurological Disorders” provides in-depth coverage of neurological diseases and disorders, including stroke, multiple sclerosis, Parkinson disease, Tourette Syndrome, Alzheimer's disease, cerebral palsy, vertigo, amnesia and epilepsy. Related topics include communication aids, electric personal assistive mobility devices, medications for treating neurological diseases and conditions, understanding the needs of Alzheimer patient caregivers and more. This two-volume set provides an alternative to resources that either fail to explore neurological disease in any depth and or do so at a level not appropriate for students and general readers.

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The article is excerpted fromGale Encyclopedia of Cancer
The resource students and researchers will turn to for reliable, up-to-date and clearly written information, the Gale Encyclopedia of Cancer is a comprehensive survey of 120 cancers, cancer drugs, traditional and alternative treatments and diagnostic procedures. The Encyclopediaincludes entries covering cancers, cancer drugs, treatments, sideeffects and diagnostic procedures. Entries typically include thefollowing elements:

• Causes and Symptoms
• Definition
• Description
• Diagnosis
• Prevention
• Resources
• Risks
• Special Concerns
• And more

An appendix provides complete contact information for cancercenters, national support groups, government agencies and researchgroups. Features include anatomical illustrations of the major bodysystems, a subject index and approximately 200 photographs and drawings. ... Read more

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Chapters: Turner Syndrome, Joubert Syndrome, Neurofibromatosis, Von Hippel-lindau Disease, Tuberous Sclerosis, Freeman-Sheldon Syndrome, Progeria, Ataxia Telangiectasia, Johanson-blizzard Syndrome, Ectrodactyly-ectodermal Dysplasia-cleft Syndrome, Klinefelter's Syndrome, Leopard Syndrome, X-Linked Ichthyosis, Dyskeratosis Congenita, Noonan Syndrome, Epidermolysis Bullosa, Epidermolytic Hyperkeratosis, Crouzon Syndrome, Keratolytic Winter Erythema, Proteus Syndrome, Adams-oliver Syndrome, Keratosis Pilaris, Bloom Syndrome, Lamellar Ichthyosis, Harlequin Type Ichthyosis, Costello Syndrome, Xeroderma Pigmentosum, Klippel-feil Syndrome, Ichthyosis Bullosa of Siemens, Apert Syndrome, Refsum's Disease, Silver-russell Syndrome, Treacher Collins Syndrome, Werner Syndrome, Poems Syndrome, Oculodentodigital Dysplasia, Albright's Hereditary Osteodystrophy, Hypohidrotic Ectodermal Dysplasia, Ichthyosis Vulgaris, Xxyy Syndrome, Cockayne Syndrome, Schindler Disease, Kabuki Syndrome, Multiple Sulfatase Deficiency, Cronkhite-Canada Syndrome, Epidermolysis Bullosa Dystrophica, Acrodermatitis Enteropathica, Netherton Syndrome, Rombo Syndrome, Darier's Disease, Cartilage-hair Hypoplasia, Wolf-hirschhorn Syndrome, Hay-wells Syndrome, Popliteal Pterygium Syndrome, Ichthyosis Hystrix, Conradi-hünermann Syndrome, Cardiofaciocutaneous Syndrome, Pachyonychia Congenita, Zunich-kaye Syndrome, Kindler Syndrome, Hailey-hailey Disease, Papillon-lefèvre Syndrome, Congenital Ichthyosiform Erythroderma, Zimmermann-laband Syndrome, Acrocephalosyndactylia, Cutis Verticis Gyrata, Townes-brocks Syndrome, Rothmund-thomson Syndrome, Marinesco-sjögren Syndrome, Disseminated Superficial Actinic Porokeratosis, Sjögren-larsson Syndrome, Van Der Woude Syndrome, Dermatopathia Pigmentosa Reticularis, Meleda Disease, Confluent and Reticulated Papillomatosis of Gougerot and Carteaud, Ibids Syndrome, Pfeiffer Syndrome, Lelis Syndrome, Child Syndrome, Ifap Syndrome, Naegeli-...More: http://booksllc.net/?id=49364 ... Read more

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This digital document is an article from Nephrology Nursing Journal, published by Thomson Gale on July 1, 2007. The length of the article is 2388 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

From the author: 3. Develop an education plan for patients with a family history of Von Hippel-Lindau Disease.

Citation Details
Title: Von Hippel-Lindau disease: an overview.(Continuing Nuring Edcuation)(Disease/Disorder overview)
Author: Michele Inglese
Publication: Nephrology Nursing Journal (Magazine/Journal)
Date: July 1, 2007
Publisher: Thomson Gale
Volume: 34Issue: 4Page: 390(5)

Article Type: Disease/Disorder overview

Distributed by Thomson Gale ... Read more

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This handbook was written as a guide and a reference book for parents and children of all ages living with von Hippel-Lindau (VHL), a hereditary cancer syndrome that increases one's risk of having tumors of the eye, brain, spinal cord, kidneys, pancreas, and adrenal glands.It was specifically designed for parents to read to their children so they could answer any questions their children might have about VHL. It can also be used as a starting point for discussions about how VHL has affected the family. The book will give children a basic idea about VHL and how they can use this information to live and manage their health. It may also be helpful for families dealing with any hereditary cancer syndrome.Written and reviewed by a team of parents and professionals, and illustrated with charming drawings and photographs from children with VHL, their siblings and friends, the book is upbeat and hopeful, helping children understand what is happening, and leaving them with a sense of empowerment. ... Read more

Customer Reviews (2)

A GREAT BOOK !!!!!!
This is a VERY informative and well written book !It is a book that is a treasure to own.. to anyone who has VHL and/or wants to understand more about VHL !!!Highly Recommended.. deserving more than the 5 star rating I'm able to give !!!

Intro from one of the illustrators
Watch Video Here: http://www.amazon.com/review/RPNSHB6FAYAA3 This video was prepared by Noah, one of the illustrators of the book. ... Read more

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In March 2001, the National Institutes of Health issued the following warning: "The number of Web sites offering health-related resources grows every day. Many sites provide valuable information, while others may have information that is unreliable or misleading." Furthermore, because of the rapid increase in Internet-based information, many hours can be wasted searching, selecting, and printing. Since only the smallest fraction of information dealing with Von Hippel-Lindau syndrome is indexed in search engines, such as www.google.com or others, a non-systematic approach to Internet research can be not only time consuming, but also incomplete. This book was created for medical professionals, students, and members of the general public who want to conduct medical research using the most advanced tools available and spending the least amount of time doing so. ... Read more

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Information on many genetic disorders, and the frequent new findings on them, has been extremely difficult to come by—until now. The “Gale Encyclopedia of Genetic Disorders” addresses the need for current, hard-to-find facts on emerging discoveries. The two-volume Encyclopedia, presented in a single alphabetical sequence, provides clear, complete information on genetic disorders, including conditions, tests, procedures, treatments and therapies, in articles that are both comprehensive and easy to understand, in language accessible to laypersons. The articles are arranged in a standardized format for quick comparison and ease of use, while non-disorder topics are covered in detail with extended entries. Students will want to consult the “Gale Encyclopedia of Genetic Disorders” for useful information on a range of well known disorders, including Down Syndrome, Trisomy, Hemophilia and Tourette Syndrome, and rarely seen diseases such as Meckel Syndrome, Neuraminidase Deficiency and Phenylketonuria.

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The VHL Handbook is a compact summary of information essential to managing the health of a person with von Hippel-Lindau disease (VHL).Designed to be read by patients, their physicians and members of their health care teams, it explains how VHL occurs, how to monitor and test for possible medical issues, and common treatment options to be considered.VHL is a cancer syndrome, in which tumors may occur in one or more of six different organ systems.The tumors of VHL occur also in the general population, but for people who may experience multiple tumors in the same organ, special attention is required to keep organs healthy throughout the patient’s lifetime, while avoiding the worst consequences of cancer.With early detection and careful management, there is more hope today for people with VHL than ever before.This book is designed to foster constructive teamwork among the patient, family, and the various health care professionals who will be involved in care. ... Read more

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Students, researchers, and patients can find reliable, up-to-date and clearly written information in “The Gale Encyclopedia of Cancer,” a comprehensive survey of 120 cancers, cancer drugs, traditional and alternative treatments and diagnostic procedures.

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Neurocutaneous diseases are a wide group of conditions that affect the nervous system but appear as lesions of the skin. Some of the more common entities have variable forms of expression that can confuse the diagnosis; for the rare conditions it is difficult to find descriptions in the literature. Recent insights into their cellular, biochemical and molecular genetic bases have shown the essential need for a new nosology and updated genotype-phenotype correlations. The book provides an authoritative source ofknowledge about these difficult problems and bridges the gap between clinical recognition and the new molecular medicine.The editors, distinguished clinicians and geneticists, assembled an internationally renowned group of collaborators, many of them the experts who first described a particular disorder or established its present accepted definition. They have written a practical, comprehensive guide to the recognition, investigation and management of more than 60 recognised phakomatoses. ... Read more