21. Ehlers-Danlos Syndrome ehlersdanlos syndrome On-Line Discussion Groups. Internet Relay Chat(IRC). Note For information on Internet Relay Chat (IRC) click here. http://www.familyvillage.wisc.edu/lists/ehlers.htm

Ehlers-Danlos Syndrome On-Line Discussion Groups Internet Relay Chat (IRC) Note: For information on Internet Relay Chat (IRC) click here Canadian Ehlers-Danlos Association (CEDA) Internet Relay Chat (IRC) This association holds a weekly chat on DALnet on the IRC network on Saturday evenings at 8:00PM EST. Mailing Lists EDS Ehlers-Danlos Syndrome Mailing List To join send a message to: eds-request@stgenesis.org In the subject line of the message type: Subscribe Canadian Ehlers Danlos Association (CEDA) mailing list: http://group.yahoo.com/group/ceda Kids Mailing List: http://group.yahoo.com/group/cedakids If you know of an on-line discussion group that should be added to the list, please send a note to Linda Rowley at: rowley@waisman.wisc.edu test Last updated August 14, 1998 by rowley@waisman.wisc.edu Document Source: http://www.familyvillage.wisc.edu/lists/ehlers.htm

22. Ehlers-Danlos Syndrome (EDS) If your question is not answered here, please contact one ofour information specialists. ehlersdanlos syndrome (EDS). http://www.arthritis.org/conditions/DiseaseCenter/eds.asp

Welcome! Log In Create Profile advanced search Español ... 51 Ways to Be Good to Your Joints If your question is not answered here, please contact one of our information specialists. Ehlers-Danlos Syndrome (EDS) What Is It? What Are the Symptoms? How Is It Diagnosed? Treatment Options ... Resources and Suggestions What Is It? Ehlers-Danlos Syndrome (A-lerz-DAN-los SIN-drome) describes a group of hereditary disorders which mainly affect the skin and joints, but may affect other organs. EDS affects the connective tissues the tissues that support various parts of the body such as skin, muscles, tendons and ligaments. In EDS, the fibrous protein collagen is faulty, causing the connective tissue to not be elastic or strong. What Are the Symptoms? There are 9 types of EDS and symptoms differ depending on the type of EDS. Type I and III have the following: Skin problems, include fragile skin that bruises or tears; soft skin, and slow-healing wounds. Joint problems, including loose, unstable joints; "double-jointed" or overextension of the joints; arthritis-like problems.

23. EHLERS-DANLOS SYNDROME ASSOCIATED WITH OLLIER DISEASE:14(3) May 1994. ehlersdanlos syndrome ASSOCIATED WITH OLLIER DISEASE. A surveyof patients with ehlers-danlos syndrome. Clin Orthop 1993;286250-6. http://www.kfshrc.edu.sa/annals/143/cr93181.html

May 1994 EHLERS-DANLOS SYNDROME ASSOCIATED WITH OLLIER DISEASE Mohammed Moussa, MCh(Ortho), PhD; Anwar Ul-Haque, FCAP; Ake Ahlberg, PhD From the Departments of Orthopedic Surgery (Drs. Moussa and Ahlberg) and Pathology (Dr. Ul-Haque), King Fahd Hospital of the University, Al-Khobar. Address reprints and correspondence to Dr. Moussa: Department of Orthopedic Surgery, King Fahd Hospital of the University, Department of Orthopedic Surgery, P.O. Box 40194, Al-Khobar 31952, Saudi Arabia. Accepted for publication 24 November 1993. The association of Ehlers-Danlos syndrome (EDS), a hereditary disorder of connective tissue, and Ollier disease, a rare, nonhereditary form of bone dysplasia, in a five-year-old female, is described. This association has not been reported before. The possibility of a common etiological factor is discussed. Case Report A five-year-old Syrian female presented with limping. She had a true shortening of the right lower limb of 4 cm. The skin was hyperextensible (Figure 1) but normal in texture. Joint hypermobility was prominent in the hands (Figure 2), feet and knees. She had 35_ and 15_ genu recurvatum for the right and left knee respectively (Figure 3). Sclerae, fundi, cornea, teeth and palate were normal. Two systolic clicks and a late systolic murmur were audible at the cardiac apex. The cardiac murmur increased in intensity on squatting, indicating asymptomatic mitral valve prolapse. FIGURE 1. Moderate skin hyperextensibility at the knee.

24. EHLERS-DANLOS SYNDROME TYPE IV ASSOCIATED WITH ehlersdanlos syndrome Type IV Associated With. Arterial and Bowel Perforation. 4The incidence of ehlers-danlos syndrome is not known, but it is not rare. http://www.kfshrc.edu.sa/annals/205_206/99-325.htm

Ehlers-Danlos Syndrome Type IV Associated With Arterial and Bowel Perforation Alaa S. Abdul Jabbar, MBBS, ABIS Ehlers-Danlos syndrome is a clinically, genetically and biochemically heterogeneous group of inherited connective tissue disorders. The disorder was first described as early as 1682, but it was not until the early 1900s that the characteristic features of the syndrome were described by Ehlers and Danlos. Ten types of Ehlers-Danlos syndrome have been described on the basis of clinical, genetic and/or biochemical differences. It is now considered a heterogeneous group of disorders, the most lethal of which is type IV, which is also called the "arterial-ecchymotic" type. Ehlers-Danlos syndrome is characterized by hyper-elasticity and fragility of the skin, hyperflexibility and looseness of the joints and a bleeding diathesis. The eyes, gastrointestinal tract, bronchopulmonary tree, and cardio-vascular system may also be affected by this defect in mesenchyme. The incidence of Ehlers-Danlos syndrome is not known, but it is not rare. It is believed to be the most prevalent of the heritable disorders of connective tissue. It is most frequently seen in Caucasians of European origin and has a male predominance. Most subjects have an autosomal dominant inheritance, and recessive inheritance is rare.

25. The Canadian Ehlers Danlos Association Working together to provide assistance, support and resources for people living with this rare genetic Category Health Conditions and Diseases ehlersdanlos syndrome......• Welcome • Who We Are • Information • Latest News • Fundraising• EDS Portal • Worldwide Support • Brochures •. http://www.ceda.ca/

Welcome Who We Are Information Latest News ... espanol english download our information package here var site="s13cedasite" This site is a member of WebRing. To browse visit Here

26. What Is Ehlers Danlos Syndrome? WHAT IS ehlersdanlos syndrome? Causes Most forms of ehlers-danlos syndrome (EDS)are transmitted as an autosomal dominant or autosomal recessive trait. http://www.ceda.ca/whateds.htm

WHAT IS EHLERS-DANLOS SYNDROME? Symptoms Causes Affected Populations Related Disorders ... References Each subtype of EDS is a distinct hereditary disorder that may affect individuals within certain families (kindreds). In other words, parents with one subtype of EDS will not have children with another EDS subtype. Depending upon the specific subtype present, Ehlers-Danlos syndrome is usually transmitted as an autosomal dominant or autosomal recessive trait. Symptoms In many individuals with EDS, associated symptoms and findings may become apparent during childhood. More rarely, depending upon the specific disorder subtype present, certain abnormalities may be apparent beginning at birth (congenital). In addition, in other individuals, such as those with mild disease manifestations, the disorder may not be recognized until adulthood. The different forms of EDS were formally classified in the 1980s using a Roman numeral system. This categorization identified at least 10 major forms of the disorder based upon genetic and biochemical abnormalities as well as associated symptoms and findings. However, a simplified, revised, updated classification system has since been published in the medical literature that classifies EDS into six primary subtypes as well as some other forms of EDS, based upon the specific underlying biochemical cause, mode of inheritance, major and minor symptoms, and physical findings. The revised classification system serves to further differentiate between the various forms of the disorder as well as some related disorders.

27. GeneReviews: Ehlers-Danlos Syndrome, Kyphoscoliotic Form Your browser does not support HTML frames so you must view EhlersDanlosSyndrome, Kyphoscoliotic Form in a slightly less readable form. http://www.geneclinics.org/profiles/eds6/

Your browser does not support HTML frames so you must view Ehlers-Danlos Syndrome, Kyphoscoliotic Form in a slightly less readable form. Please follow this link to do so.

28. The Contact A Family Directory - EHLERS-DANLOS SYNDROME printer friendly, ehlersdanlos syndrome, ehlers-danlos syndrome SUPPORTGROUP. ehlers-danlos syndrome Support Group PO Box 335 Farnham http://www.cafamily.org.uk/Direct/e21.html

printer friendly EHLERS-DANLOS SYNDROME home more about us in your area conditions information ... how you can help search this site Ehlers-Danlos: arthrochalasis-multiplex congenita: cutis hyperelastica:EDS Ehlers-Danlos Syndrome consists of several types of genetic connective tissue disorders. In general, these are due to collagen (a naturally occurring protein) abnormality. Common characteristics include abnormalities of the skin, ligaments and in some instances internal organs. Problems include fragile and/or stretchy skin, bruising, poor wound healing and loose joints which are prone to dislocation and subluxation. Chronic joint and limb pain is common even when skeletal radiographs are normal. Early degenerative arthritis, mitral valve prolapse and hernias may also present problems. Prematurity due to rupture of the fetal membranes can occur in pregnancy. When bruising presents in a child it may be incorrectly attributed to non-accidental injury. The different types of the syndrome are not graded in order of severity of the condition but each is a distinct type. Severe forms of the condition may be life threatening.

29. Ehlers-Danlos Syndrome Info ehlersdanlos syndrome Info. Information on ehlers-danlos syndrome. Ehlers-DanlosSyndrome Revised Nosology, Villefranche, 1997. http://anaiis.tripod.com/hmedfm/id10.html

Ehlers-Danlos Syndrome Info Home About This Site Hypermobility Syndrome Info Fibromyalgia Syndrome Info Ehlers-Danlos Syndrome Info Chronic Fatigue Syndrome Info Useful Links Related Webrings Support: Talk to Others ... Search this Site Information on Ehlers-Danlos Syndrome Ehlers-Danlos syndrome (EDS) is a heterogeneous group of heritable connective tissue disorders, characterized by articular (joint) hypermobility, skin extensibility and tissue fragility. There are six major types of EDS. The different types of EDS are classified according to their manifestations of signs and symptoms. Each type of EDS is a distinct disorder that "runs true" in a family. This means that an individual with Vascular Type EDS will not have a child with Classical Type EDS. Individuals with EDS have a defect in their connective tissue, the tissue which provides support to many body parts such as the skin, muscles and ligaments. The fragile skin and unstable joints found in EDS are the result of faulty collagen. Collagen is a protein which acts as a "glue" in the body, adding strength and elasticity to connective tissue. Symptoms Clinical manifestations of EDS are most often skin and joint related and may include: Skin: soft velvety skin; variable skin hyperextensibility; fragile skin that tears or bruises easily (bruising may be severe); severe scarring; slow and poor wound healing; development of molluscoid pseudotumors (fleshy lesions associated with scars over pressure areas).

30. Ehlers-Danlos Syndrome: Are Genes The Only Cause? ehlersdanlos syndrome Is Diet A Treatment? ehlers-danlos syndrome Environmentaland Genetic Factors in EDS and Related Connective Tissue Disorders. http://www.ctds.info/ehlers_danlos_syndrome.html

Con nective Tissue Disorder Home Search Site Map ... Links Ehlers-Danlos Syndrome: Is Diet A Treatment? Read my Contents: Ehlers-Danlos Syndrome: Environmental and Genetic Factors in EDS and Related Connective Tissue Disorders Connective Tissue Disorders: Interesting Overlaps Ehlers-Danlos Syndrome: Environmental and Genetic Factors in EDS and Related Connective Tissue Disorders W elcome to my site on health, logic and hereditary connective tissue disorders. I started the research for this web site after I was diagnosed with Ehlers-Danlos syndrome, a genetic disorder with no known cure. In researching Ehlers-Danlos syndrome and related disorders, I found that much of the hereditary connective tissue disorder research is based on the premise that the various disorders are each caused by single genes unrelated to each other and unrelated to environmental factors. After spending a lot of time researching Ehlers-Danlos syndrome, related disorders, and the field of genetics in general, I disagree with this premise. I found lots of links between EDS and environmental factors, especially nutrition. I used much of this research to improve my own condition and that of my children, and I think there is every reason to think that environmental factors may be considerations for others with Ehlers-Danlos syndrome and similar connective tissue disorders.

31. Ehlers-Danlos Syndrome: Diet Considerations ehlersdanlos syndrome Diet Changes I Found Helpful. Part I. Also see Ehlers-DanlosSyndrome Diet Changes - Part II. Read my disclaimer and terms of use. http://www.ctds.info/ehlers_danlos_diet.html

Con nective Tissue Disorder Home Search Site Map ... Links Ehlers-Danlos Syndrome Diet Changes I Found Helpful Diet tips that helped my fibromyalgia, breathing problems, allergies, bleeding and other EDS problems Part I Also see Ehlers-Danlos Syndrome Diet Changes - Part II Read my Contents: Overview - What My Basic Problems Have Been Elimination diets Red meat and grain intake Variety meats and broth ... Root vegetables Overview - What My Basic Problems Have Been I've been working with a nutrition oriented doctors and a nutritionist this last year or so, and I must say I've learned more about what's really been wrong with me in the last couple of years than I did in the previous four decades of my life. I was helpful to finally get diagnosed with Ehlers-Danlos syndrome because it provided a rational link for all of my diverse symptoms, but the diagnosis itself didn't help me to improve my health since EDS is considered by most doctors to be an inherited genetic disorder with no known cure. Bit by bit, I've been assembling pieces of information about my health problems, researching nutrition and lately everything has been starting to all fit together and make sense.

32. HONselect - Ehlers-Danlos Syndrome English ehlersdanlos syndrome, - Cutis Elastica - Ehlers-Danlos Disease - Disease,Ehlers-Danlos - Ehlers Danlos Disease - Ehlers Danlos Syndrome - Syndrome http://www.hon.ch/HONselect/RareDiseases/C14.907.934.240.html

List of rare diseases: English Deutsch Language: MeSH term: Accepted terms: English: Ehlers-Danlos Syndrome - Cutis Elastica - Ehlers-Danlos Disease - Disease, Ehlers-Danlos - Ehlers Danlos Disease - Ehlers Danlos Syndrome - Syndrome, Ehlers-Danlos Français: EHLERS DANLOS, SYNDROME Deutsch: Ehlers-Danlos-Syndrom - Cutis hyperelastica - Fibrodysplasia elastica generalisata Español: SINDROME DE EHLERS-DANLOS - CUTIS ELASTICO Português: SINDROME DE EHLERS-DANLOS - CUTIS ELASTICA HONselect ressources Definition: Yes Articles: Yes Images: No News: No Conferences: No Clinical trials: No Web sites: English Yes Français No Deutsch No Español No Português No Home About us Site map Feedback ... HONewsletter http://www.hon.ch/HONselect/RareDiseases/C14.907.934.240.html Last modified: Thu Jul 25 2002

33. HON Mother & Child Glossary, Ehlers-Danlos Syndrome .......External survey Questionnaire on mood conducted by the IMSP Faculty ofMedicine - University of Geneva . ehlers-danlos syndrome. http://www.hon.ch/Dossier/MotherChild/child_musculoskeletal/muscoskel_ehlersdanl

Introduction Reproduction Pregnancy During Pregnancy ... Glossary A-Z Childhood Illness Bacteria Virus Cancer Gastrointestinal ... Mental Health External survey "Questionnaire on mood" conducted by the "IMSP- Faculty of Medicine - University of Geneva" Ehlers-Danlos Syndrome Description (EDS) is a diverse group of hereditary connective tissue disorders , characterised by articular (joint) hypermobility, skin extensibility and tissue fragility. ). Typically only one type of EDS will run through a family. The fragile skin and unstable joints found in EDS are the result of faulty collagen. Collagen is a protein which acts as a "glue" in the body, adding strength and elasticity to connective tissue. Prevalence is estimated as 1 in 5,000 to 1 in 10,000. It is known to affect both males and females of all racial and ethnic backgrounds. Symptoms and Signs Clinical manifestations of EDS are most often skin and joint related and may include: Skin molluscoid pseudotumours Joints . Joint hypermobility; loose/unstable joints which are prone to frequent dislocations and/or subluxations; joint pain; hyperextensible joints (they move beyond the joint's normal range); early onset of osteoarthritis.

34. Kathy Seslar - Ehlers-Danlos Syndrome ehlersdanlos syndrome (EDS) is a heterogeneous group of heritable connectivetissue disorders, characterized by articular (joint) hypermobility, skin http://www.leaderpro.com/eds/

Ehlers-Danlos Syndrome (EDS) is a heterogeneous group of heritable connective tissue disorders, characterized by articular (joint) hypermobility, skin extensibility and tissue fragility. Links... Ehlers-Danlos National Foundation Visit the Chat Room Visit the Bulletin Board Kathy's Journal Links E-Mail Me! This Site Created and Hosted by Hi, my name is Kathy Seslar of Tomahawk, Wisconsin, and I have EDS Vascular Type (Ehlers-Danlos Syndrome). I am 43 years old, a wife and mother of two. In the spring of 1998 I realized a life long goal, I received my college degree in elementary education. In the 13 years prior to receiving my degree I was employed and I also did my practice teaching in the Tomahawk (WI) School District. Presently I am teaching special education in the Tomahawk District. I believe God hand picked this job for me because who better to teach children with special needs than a person with special needs herself. Ehlers Danlos Syndrome is a heterogeneous group of heritable connective tissue disorders, characterized by articular (joint) hypermobility, skin extensibility and tissue fragility. There are six major types of EDS. The different types of EDS are classified according to their manifestations of signs and symptoms. Each type of EDS is a distinct disorder that "runs true" in a family. This means that an individual with Vascular Type EDS will not have a child with Classical Type EDS. Individuals with EDS have a defect in their connective tissue, the tissue which provides support to many body parts such as the skin, muscles and ligaments. The fragile skin and unstable joints found in EDS are the result of faulty collagen. Collagen is a protein which acts as a "glue" in the body adding strength and elasticity to connective tissue.

35. Kathy Seslar - Ehlers-Danlos Syndrome - Links Kathy Seslar's EDS Links This part of the site is still under construction. If youhave any link ideas please feel free to email them to kerry@leaderpro.com. http://www.leaderpro.com/eds/links.html

Kathy Seslar's EDS Links This part of the site is still under construction. If you have any link ideas please feel free to e-mail them to kerry@leaderpro.com Canadian Ehlers-Danlos Association Ehlers-Danlos National Foundation NORD National Organization for Rare Disorders Ehlers-Danlos Syndrome UK Support Group Back to the Main Page! E-Mail Me

36. EMedicine - Ehlers-Danlos Syndrome : Article By G Bradley Schaefer, MD ehlersdanlos syndrome. Last Updated March 13, 2002, Table 1. ClinicalForms of ehlers-danlos syndrome. Type, Form, Distinguishing Features. http://www.emedicine.com/PED/topic654.htm

(advertisement) Home Specialties CME PDA ... Patient Education Articles Images CME Patient Education Advanced Search Link to this site Back to: eMedicine Specialties Pediatrics Genetics And Metabolic Disease Ehlers-Danlos Syndrome Last Updated: March 13, 2002 Rate this Article Email to a Colleague Synonyms and related keywords: EDS, connective tissue disorders, joint laxity, articular hypermobility, skin laxity, hyperextensible skin, abnormal wound healing, hypermobility syndrome, collagen abnormalities, lysyl hydroxylase deficiency, periodontitis, fibronectin, platelet aggregation defect, acrogeria, tissue fragility, vascular rupture, colonic perforation, excessive bruising, easy bruising, prominent venous plexus, petechiae, retinal detachment, dystrophic scarring AUTHOR INFORMATION Section 1 of 10 Author Information Introduction Clinical Differentials ... Bibliography Author: G Bradley Schaefer, MD , Director of Hattie B Munroe Center for Human Genetics, Professor, Department of Pediatrics, University of Nebraska Medical Center G Bradley Schaefer, MD, is a member of the following medical societies:

37. EMedicine - Ehlers-Danlos Syndrome : Article By Enrico Ceccolini, MD ehlersdanlos syndrome. Last Updated April 9, 2002, Caption Picture 1. Patient withehlers-danlos syndrome. Note the abnormal ability to elevate the right toe. http://www.emedicine.com/derm/topic696.htm

(advertisement) Home Specialties CME PDA ... Patient Education Articles Images CME Patient Education Advanced Search Link to this site Back to: eMedicine Specialties Dermatology Pediatric Diseases Ehlers-Danlos Syndrome Last Updated: April 9, 2002 Rate this Article Email to a Colleague Synonyms and related keywords: EDS, tenascin-X deficiency syndrome, lysyl hydroxylase deficiency syndrome, inherited connective tissue disorders AUTHOR INFORMATION Section 1 of 11 Author Information Introduction Clinical Differentials ... Bibliography Author: Enrico Ceccolini, MD , Consulting Staff, Department of Dermatology, University of Bologna, Italy Coauthor(s): Robert A Schwartz, MD, MPH , Professor and Head, Dermatology, Professor of Pathology, Pediatrics, Medicine, and Preventive Medicine and Community Health, UMDNJ-New Jersey Medical School Enrico Ceccolini, MD, is a member of the following medical societies: American Academy of Dermatology Editor(s): Takuo Tsuji, MD , Chairman, Professor, Department of Dermatology, Nagoya City University, Japan; David F Butler, MD

38. Ehlers-Danlos Syndrome ehlersdanlos syndrome up. ehlers-danlos syndrome UK Support Group,The ehlers-danlos syndrome UK Support Group is a UK based charity http://omni.ac.uk/browse/mesh/detail/C0013720L0013720.html

Ehlers-Danlos Syndrome [up] Related topics: broader Collagen Diseases Skin Abnormalities Skin Abnormalities other Dermatitis, Atopic Epidermolysis Bullosa Incontinentia Pigmenti Multiple Myeloma ... Ehlers-Danlos Syndrome UK Support Group The Ehlers-Danlos Syndrome UK Support Group is a UK based charity that provides a variety of services to help sufferers and professionals throughout the world. The Web site contains information about the group, news, and details of their publications. Charities Ehlers-Danlos Syndrome Great Britain Genetic and metabolic diseases [Vanderbilt pediatric interactive digital library] A collection of short documents introducing some genetic and metabolic disorders. Topics covered include Ehlers- Danlos syndrome, Foetal alcohol syndrome, Hyperammonemia (urea metabolism) and Osler-Weber-Rondu syndrome. All documents are in text format (no illustrations) and contain a list of further reading. This information is made available on the Web by Vanderbilt School of Medicine in the USA. Ammonia / blood Ehlers-Danlos Syndrome Fetal Alcohol Syndrome Telangiectasia, Hereditary Hemorrhagic

39. Ehlers-Danlos Syndrome ehlersdanlos syndrome. ehlers-danlos syndrome Support Group 24 WendellAvenue Portmarnock, Co Dublin, Ireland Phone 01 8460570. http://www.kumc.edu/gec/support/ehlers.html

Ehlers-Danlos syndrome Ehlers-Danlos National Foundation (EDNF) 6399 Wilshire Boulevard, Suite 510 Los Angeles, CA 90048 Fax: (213) 651-1366 E-mail: loosejoint@aol.com Web site: http://www.ednf.org/ Regional Support Groups Canadian Ehlers-Danlos Association (CEDA) 183 Charlton Avenue Thornhill, Ontario L4J 6E9 Canada Phone: (905) 761-7552 Fax: (905) 761-7567 E-mail: ceda@home.com or pghand@shaw.wave.ca Web site: http://www.tor.shaw.wave.ca/~ceda/ Ehlers-Danlos Support Group , United Kingdom and Irish Republic Support Group P. O. Box 335 Farnham, England GU10 1XJ Phone UK: 01252 690 940 or World +44 1252 690 940 (UK Office Hours ONLY) Fax: 01252 404573 E-mail: director@ehlers-danlos.org Includes photos Australian EDS Support Group PO Box 106 Marulan NSW 2579 Phone / Fax 0011 61-2-4841 1111 E-mail: prairie@goulburn.net.au or EDSAussie@altavista.net Danish Ehlers-Danlos Society Eskildsvej 12 2990 Nivaa, Denmark Phone / Fax: 45 49 14 9632 E-mail: betina.boserup@image.dk

40. The DRM WebWatcher: Ehlers-Danlos Syndrome ehlersdanlos syndrome (EDS) is group of hereditary connective tissuedisorders that can affect the skin, ligaments, and internal organs. http://www.disabilityresources.org/EHLERS.html

Home Subjects States Librarians ... Contact Us The DRM WebWatcher (Subjects) Ehlers-Danlos Syndrome Updated 12/2001 A B C D ... About/Hint/Link Ehlers-Danlos Syndrome (EDS) is group of hereditary connective tissue disorders that can affect the skin, ligaments, and internal organs. Canadian Ehlers-Danlos Association This bilingual (English/French) website provides information about EDS, self-help information, personal stories, a list of worldwide EDS groups, links, and more. The association also runs listservs for adults and children. Ehlers-Danlos National Foundation (EDNF) This American membership organization provides articles, pictures, a quarterly newsletter, information about local support groups, a kids' section, links, and more. Ehlers-Danlos Syndrome UK Support Group This British group's website provides fact sheets, news, links, a message board, and other resources. Ehlers Danlos Syndrome An overview from the National Organization for Rare Disorders. GeneClinics Good clinical profiles of Ehlers-Danlos Syndrome, Kyphoscoliosis Type

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