81. Health Library - Ehlers Danlos Syndrome Ehlers Danlos Syndrome. Self Help Clearinghouse. 25 branches. Founded 1985.Emotionalsupport and updated information to persons with ehlersdanlos syndrome. http://bhagh.nhshealth.org/Library/HealthGuide/SelfHelp/topic.asp?hwid=shc29ehl

82. The Doctor's Lounge: Ehlers-Danlos Syndrome Connective tissue disorders. ehlersdanlos syndrome. Inherited collagendefects in collagen in the extracellular matrices of various tissues. http://www.thedoctorslounge.net/clinlounge/diseases/ctiss/ehlersd.htm

Home Member Search Discussion ... Contact With over 1 million users and awarded Yahoo site of the day! Start page Favorites TRANSLATE... Italian English Portugese French Spanish German Get FREE Medical Consultation! Meet the Lounge Doctors! Join the Mailing List Ask a doctor ... Membership Student Student Lounge Medical Tutorials Medical Games Discussion ... Membership Professional Discussion Specialty Medline search Guidelines search ... Membership Send TheDoctorsLounge a BIG Thank You! Back to connective tissue disease index Connective tissue disorders Ehlers-Danlos syndrome Inherited collagen defects in collagen in the extracellular matrices of various tissues. fragility of tissues joint hypermobility skin hyperextensibility. These features plus the presence of a family history of the exact same subtype of EDS suspected are the hallmarks of diagnosis. Classical Type Marked joint hypermobility, skin hyperextensibility (laxity), and fragility. Autosomal dominant inheritance. Hypermobility Type (formerly Type III) Joint hypermobility is the major manifestation. Autosomal dominant.

83. Ehlers-Danlos Syndrome - ICQ Interest Groups - ICQ.com Back to Homepage Groups Health Support Diseases Disorders Rare Diseasesand Disorders ehlersdanlos syndrome ICQ Interest Groups - Ehlers-Danlos http://groups.icq.com/HealthandMedicine/group.asp?no=1512814

84. Ehlers-Danlos Syndrome | Principal Health News ehlersdanlos syndrome. Barrett, Julia. Living a Restricted Life with Ehlers-DanlosSyndrome. International Journal of Nursing Studies 37 (2000) 111-118. http://www.principalhealthnews.com/topic/topic100586746

About This Site Registration FAQ Contact Us ... Site Awards You are here: Home Health A to Z Ehlers-Danlos Syndrome Ehlers-Danlos Syndrome Barrett, Julia Below: Definition Description Causes and symptoms Diagnosis ... Resources Definition The Ehlers-Danlos syndromes (EDS) refer to a group of inherited disorders that affect collagen structure and function. Genetic abnormalities in the manufacturing of collagen within the body affect connective tissues, causing them to be abnormally weak. Description Collagen is a strong, fibrous protein that lends strength and elasticity to connective tissues such as the skin, tendons, organ walls, cartilage, and blood vessels. Each of these connective tissues requires collagen tailored to meet its specific purposes. The many roles of collagen are reflected in the number of genes dedicated to its production. There are at least 28 genes in humans that encode at least 19 different types of collagen. Mutations in these genes can affect basic construction as well as the fine-tuned processing of the collagen. EDS was originally described by Dr. Van Meekeren in 1682. Dr. Ehlers and Dr. Danlos further characterized the disease in 1901 and 1908, respectively. Today, according to the Ehlers-Danlos National Foundation, one in 5,000 to one in 10,000 people are affected by some form of EDS.

85. A Skinpatient's World Ehlers Danlos Syndrome Info ehlersdanlos syndrome. ehlers-danlos syndrome (EDS) is a heterogeneousgroup of heritable disorders of connective tissue, characterized http://www.skinpatient.com/ptinfo/E/ehlersinfo.htm

86. Hypermobility Forum For People With Marfan, EDS This is a moderated discussion board for Hypermobility syndrome, Marfan, and ehlersdanlos. Includes personal experiences, traditional and alternative treatment, and pain. http://marge.com/hypermobility/

Welcome to Hypermobility Forum for people with Marfan, EDS Your browser does not support Frames. Therefore, navigation of Hypermobility Forum for people with Marfan, EDS will not be aided by having a menu present at all times. The following is the menu made available to those with a frame-compatible browser: Top (Index) Instructions Formatting Troubleshooting ... User Profile Administration (Requires Frames) Click Here to Start

87. Page Not Found, Cincinnati Childrens Hospital Medical Center The Marfan / Ehlers Danlos syndrome Clinic at Cincinnati Children's HospitalMedical Center specializes in evaluating, diagnosing and managing infants http://www.cincinnatichildrens.org/Services/Programs_And_Services/marfan-ehlers-

Sorry Page Not Found The page that you requested does not currently exist on the Cincinnati Children's Hospital and Medical Center Web site. Quite possibly, during a recent renovation, the page was moved. Our powerful search engine can assist you in finding the page. The search engine is just a click away. Useful Features send this page to a friend send an ecard to a patient make a donation rate this page ... printer friendly page 3333 Burnet Avenue, Cincinnati, Ohio 45229-3039 Legal Notice Serving infants to adolescents, Cincinnati Children's Hospital Medical Center is an international leader in pediatric health care, research and education. Home Contact Us Site Map Go to Advanced Search

88. Titre De Page Informations, soutien et mise en relation des familles. http://assoc.wanadoo.fr/ehlers.danlos/

Bienvenue sur le site de l'AFSED AFSED

89. Ehler Danlos Syndrome MEDSTUDENTS-METABOLIC DISORDERS A discussion about Ehler Danlos syndrome is carried out, giving focus to its clinical manifestations, differential diagnosis and treatment. Ehler Danlos syndrome is one of the along with Marfan syndrome, pseudoxantoma elasticum, osteogenese imperfecta, epidermolysis bullosa and Alport syndrome. It comprises http://www.medstudents.com.br/metdis/metdis7.htm

Metabolic Disorders Medstudents' Homepage Ehler Danlos Syndrome Definition Ehler Danlos syndrome is one of the inheritable connective tissues disorders along with: Marfan syndrome, pseudoxantoma elasticum, osteogenese imperfecta, chondrodysplasias, epidermolysis bullosa and Alport syndrome. It comprises a group of ten different subtypes. The main clinical manifestations are skin fragility, abnormal scar formation, excessive bruising, joint laxity and sometimes rupture of viscera and arteries. Etiology The basic defect is in the synthesis of collagen type I and III, leading to low tensile strength of skin and artery wall. Clinical manifestations Type III, the so called familial hypermobility disease account for the majority of cases observed. Clinical manifestations varies among the ten groups. Type I (Gravis), type II (mitis), type V (X-linked) and type X have similar clinical manifestations, except for the greater gravity of these in type I. They present with marked joint laxity, hyperextensible skin, easy bruising and "cigarette paper scars" in areas of trauma. Major complication are joint dislocation, skin fragility and osteoarthritis of early onset.

90. Ehlers Danlos Syndrome Ehlers Danlos syndrome Menu. This is a webforum to discuss and comment on EhlersDanlos syndrome. Click here to Enter a new Neurology WebForum article http://neuro-www.mgh.harvard.edu/forum/EhlersDanlosSyndMenu.html

Ehlers Danlos Syndrome Menu This is a webforum to discuss and comment on Ehlers Danlos Syndrome. Click here to Enter a new Neurology WebForum article... This Web Forum is not moderated in any sense. Anyone on the Internet can post articles or reply to previously posted articles, and they may do so anonymously. Therefore, the opinions and statements made in all articles and replies do not represent the official opinions of MGH and MGH Neurology. Neither is MGH or MGH Neurology responsible for the content of any articles or replies. No messages are screened for content. - Very Important Message! - Please Click Here to Read Current Posts: 8/20/98 to Present Useful Websites can be found and posted here! (1/3/00) 7:20 AM (1/1/00) 3:49 PM (12/30/99) 11:33 PM ... test (8/20/98) 15:41 IMPORTANT: If this page seems to be missing recently added documents, click the "Reload Page" button on your Web Browser to update the menu. Return to the main Neurology WebForum Page. These forums are maintained by the Department of Neurology at Massachusetts General Hospital John Lester - Webspinner

91. Marfan Syndrome, Cincinnati Childrens Hospital Medical Center HeartRelated syndromes. Marfan syndrome. Manifestations, Causes,Diagnosis, Treatment, Prognosis Look What is Marfan syndrome? The http://www.cincinnatichildrens.org/Health_Topics/heart-encyclopedia/disease/synd

Heart Center Encyclopedia Introduction Cardiac Anomalies / Congenital Heart Defects Heart Diseases ... Down Syndrome Marfan Syndrome Velo-Cardio-Facial Syndrome VACTERL (VATER) Association Signs and Symptoms Cardiac-Related Diagnostic Methods ... Glossary Heart-Related Syndromes Marfan Syndrome Manifestations, Causes, Diagnosis, Treatment, Prognosis Explanation Manifestations Causes Diagnosis ... Prognosis What is Marfan syndrome? The Marfan syndrome is a genetic disorder that affects the body's connective tissues, or the tissues in between the main cells of each organ of the body. All organs contain connective tissue and, hence, the manifestations of Marfan syndrome appear in many parts of the body, especially the skeletal system, the eyes, the heart and blood vessels and the lungs. The term "syndrome" refers to the collection of physical findings that occur together often enough to provide a recognizable pattern that allows the diagnosis to be made. It was first described in a six year old girl by the French pediatrician, Antoine Marfan, in 1896. Manifestations of Marfan syndrome The heart is affected in nearly 80 percent of patients with this syndrome. The most important finding is enlargement or dilation of the aorta, the main blood vessel that carries blood to the body. This abnormality in connective tissue of the first few inches of the aorta allows the aorta to stretch sufficiently to cause tearing or rupture.

92. Short Description Of Cell Lines. Pathology Ehlers-Danlos Version 4.200205, Short description of cell lines. Pathology EhlersDanlossyndrome OMIM Home. - By selecting the cell line name, you http://www.biotech.ist.unige.it/cldb/pat12.html

93. Short Description Of Cell Lines. Pathology: Ehlers-Danlos Syndrome, Type III 130 Version 4.200205, Short description of cell lines. Pathology EhlersDanlossyndrome, type III 130020 OMIM record. - By selecting http://www.biotech.ist.unige.it/cldb/pat202.html

Version Short description of cell lines. Pathology: Ehlers-Danlos syndrome, type III OMIM record By selecting the cell line name , you will receive the detailed description of the cell line By selecting one of the terms between parentheses, you will receive the list of all relevant cell lines You can search any term of the list by using the 'Find' utility of your browser EDS 100 human, Caucasian skin, fibroblast BGEBS ... By Beatrice...

94. Ehlers – Danlos Syndrome Ehlers – danlos syndrome,, Print this article, Persistent joint effusion orhaemarthrosis may be noted in patients with Ehlers – Danlos syndrome. http://www.amershamhealth.com/medcyclopaedia/Volume III 1/Ehlers Danlos syndrom

Medcyclopaedia About Medcyclopaedia Amersham Health Search for: Type a word or a phrase. All forms of the word are searchable. Advanced search Browse entry words starting with: A B C D ... Other characters Try our Medcyclopaedia Premium Edition with added tools and functionality tailored to make your working day easier. The following tools are presently available: Expanded search *For Medical Professionals only, registration required Ehlers – danlos syndrome, (Edward Ehlers, 1863–1937, Danish dermatologist and Henri Alexandre Danlos, 1844–1912, French dermatologist), the general name for a group of 11 syndromes involving abnormalities of connective tissue characterized by hyperelasticity and fragility of the skin, hyperlaxity of the joints and a bleeding diathesis . Other systems that may be involved are the eye and the gastrointestinal, bronchopulmonary, genitourinary and cardiovascular systems. These syndromes vary genetically and biochemically but share the same complex of clinical abnormalities. Type IV is the most serious form of the disease and carries a decreased life expectancy. The primary disorder is a defect in collagen synthesis. No primary bone abnormality has been identified. Molluscoid fibrous tumours composed of proliferating connective tissue and degenerated fat are found predominantly on the pressure points of the body. Patients also exhibit subcutaneous spherules of necrotic fat in the skin that may be related to subclinical trauma. The bleeding diathesis may result from abnormalities in the vessel walls and defects in the supporting perivascular tissues that cause failure of tamponade. Subcutaneous haematomas are also seen.

95. Ehlers ehlersdanlos Support Group. This Page has tempoarilymoved. CLICK HERE TO VISIT OUR PAGES http://ourworld.compuserve.com/homepages/eds_uk/

Ehlers-Danlos Support Group This Page has tempoarily moved CLICK HERE TO VISIT OUR PAGES

96. The Ehlers Danlos Syndrome Once thought to be a rare condition of the connective tissue the EhlersDanlos syndrome is now believed to affect 1 in every 5000 people. http://ok.essortment.com/ehlersdanlossy_rgkq.htm

The Ehlers Danlos syndrome The Ehlers-Danlos Syndrome (EDS) is a group of genetic conditions that have resulted from defects in a collagen molecule which would normally give strength and adhesion to the body's tissues. In many cases the disorder affects the skin and it can become excessively extendible (stretchy), fragile and bruise easily. The joints are often affected with or without skin problems. The ligaments and tendons become extremely lax and this can often result in dislocations and the onset of early degenerative osteoarthritis. Also, the walls of the blood vessels, intestines, uterus and also the foetal membranes may be markedly fragile which can often have severe repercussions. The healing of both accidental and surgical wounds is frequently very poor leaving dramatic scarring. Other problems often include prolapse of the heart's mitral valve, aneurysms, hernias, and a range of orthopaedic and dental problems. The manner in which it affects patients in degree of severity is extremely unpredictable. Although Ehlers-Danlos Syndrome was once considered to be a fairly rare condition now it is believed to affect 1 in 5,000 people. It affects both men and women with no predisposition to race or ethnicity. bodyOffer(28912) The condition was named after the two doctors who first grouped the symptoms. Edvard Ehlers was a Danish physician specializing in dermatology and Henri-Alexandre Danlos was a doctor at the Hospital Tenon, Paris, France. Although it wasn't until 1936 that Frederich Parkes-Weber proposed that the name "Ehlers-Danlos Syndrome" be applied to the disorder the condition was well known before then. A Spanish sailor known as George Albes was infamous for being able to stretch the skin on his chest out to arm's length. He was even asked to attend a meeting of physicians at the Academy of Leyden to demonstrate his unusual ability.

97. Living With Ehlers Danlos Syndrome English title Living with Ehlers Danlos syndrome Swedish title Att leva med EhlersDanlos Syndrom Project leader Gun Nordström All projects by this author http://research.kib.ki.se/e-uven/public/HA1666.html

Research project #HA1666 English title Living with Ehlers Danlos Syndrome Swedish title Att leva med Ehlers Danlos Syndrom Project leader Gun Nordström All projects by this author Institution Department of Nursing All projects at this institution Description Publications: `Living a restricted life with Ehlers-Danlos Syndrom`. Accepted for publication. Main Financing Socialstyrelsen, Forskningsnämnd Vård, Vårdalstiftelsen, Forsknings- och utvecklingsanslag Södersjukhuset. Partners Associate professor Kim Lützén References Project staff Britta Berglund, R.N., Doctoral student Entered Updated news education research library ... about Karolinska Institutet Karolinska Institutet, SE-171 77 Stockholm, Sweden. Tel: +46-8-728 64 00, Fax: +46-8-31 11 01, info@ki.se

98. Ehlers Danlos Syndrome EDS, Ehlers Danlos syndrome, Chronic Fatigue syndrome, Fibromyalgia, Silver RingSplints, Beautiful Beads, Jewellery, Joyce Norris. Ehlers Danlos syndrome. http://leda.spaceports.com/~nomentan/eds/eds_summary.htm

Ehlers Danlos Syndrome from http://www3.ns.sympatico.ca/whuzzy/EDS.htm What is EDS? How is EDS inherited? Autosomal Dominant ... Hypermobility Type (Formerly EDS Type III) Vascular Type (Formerly EDS Type IV) Kyphoscoliosis Type (Formerly EDS Type VI) Arthrochalasia Type (Formerly EDS Type VIIB) Dermatosparaxis Type (Formerly EDS Type VIIC) Some Helpful Organizations Supporting People Living With EDS What is EDS? Ehlers-Danlos syndrome (EDS) is a group of hereditary disorders that affects mainly the skin and joints, but other organs as well. Ehlers and Danlos were two physicians who described a type of EDS in the 1900s. Thus, the syndrome was named after them. Since their original descriptions, additional types have been described. The " classic " type identified by Ehlers and Danlos is now called EDS I. EDS is a relatively rare disorder; occurring in fewer than 1 in 20,000 people. It occurs in both children and adults. It is believed that people with EDS have a defect in their connective tissue. Connective tissue provides support to many parts of the body such as the skin, muscles, tendons and ligaments. The cause of fragile skin and unstable joints in some types of EDS is faulty collagen, the protein "glue" that makes connective tissue strong and elastic.

99. Health Library: All Topics: E: Ehlers Danlos Syndrome - Healthfinder® Ehlers Danlos syndrome Facts This page provides general consumer information aboutEDS, its symptoms, treatment, types of and manifestations, and synonyms. http://www.healthfinder.gov/Scripts/SearchContext.asp?topic=272

100. Ehlers Danlos, Syndrome : Arborescences MeSH Translate this page Ehlers Danlos, syndrome. Ehlers Danlos, syndrome C14.907.934.240 page CISMeFdu motclef macroglobulinémie C14.907.934.960 page CISMeF du motclef http://www.chu-rouen.fr/navimesh/naviehlersdanlossyndrome.html

Ehlers Danlos, Syndrome : arborescences MeSH Menu général CISMeF Vous pouvez aussi consulter toutes les arborescences des mots clés utilisés dans CISMeF appareil cardiovasculaire, maladies vaisseaux, maladies troubles hémorragiques vasculaires angiomatose hémorragique familiale ... xeroderma pigmentosum 27 février 2003 courriel Menu général CISMeF Haut de page © CHU de Rouen . Toute utilisation partielle ou totale de ce document doit mentionner la source.

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