1. Cancer.gov - URL Changed Information and resources for retinoblastoma. http://cancernet.nci.nih.gov/Cancer_Types/Retinoblastoma.shtml

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2. GeneReviews: Retinoblastoma Click to enter site Site design by Spliteye Multimedia http://www.geneclinics.org/profiles/retinoblastoma

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3. Mike's Life With Retinoblastoma One parents account and knowledge of retinoblastoma. http://www.mrmegabyte.net/rb

On this page What is it? Tony Tony Adults ... Home Retinoblastoma Support

4. The National Retinoblastoma Research And Support Foundation Organize a network of local support groups that will disseminate knowledge and assurance to families Category Health Conditions and Diseases Cancer Eye retinoblastoma......THE NATIONAL retinoblastoma RESEARCH AND SUPPORT FOUNDATION. 900 NW 17thStreet, Room 257 PO Box 016880 Miami, FL 331016880 (800) 226-2734. http://www.djo.harvard.edu/meei/PI/RB/NRRSF.html

THE NATIONAL RETINOBLASTOMA RESEARCH AND SUPPORT FOUNDATION 900 N.W. 17th Street, Room 257 PO Box 016880 Miami, FL 33101-6880 Parents and friends of children treated at Bascom Palmer Eye Institute recently established " The National Retinoblastoma Research and Support Foundation ." Its goal is to organize a network of local support groups that will disseminate knowledge and assurance to families dealing with the emotional pain and anxieties related to having a child diagnosed with retinoblastoma. NRRSF Founding Directors Timothy Murray, M.D., Chairman of the Board Julie Schechter, President Kim Miller, Vice President Nicole Valor, Treasurer Judy Tashjian, R.N. Marie Guanci Gary Winston Denise Winston Here are some of the articles from the current issue of the NRRSF newsletter, Vision (If you would like to receive copies of future issues of the newsletter or to get more information about the NRRSF, please call the number listed above): Visiting the Ocularist...What to expect by Scott Garonzik, Ocularist-Anaplastologist Early School Intervention by Sandy Edmonds, Teacher, Broward County Schools Program for Visually Impaired Students

5. The Retinoblastoma Society Website A national charity offering support and information to people with retinoblastoma and their families.Category Health Conditions and Diseases Cancer Eye retinoblastoma......Help pages from The retinoblastoma Society. http://www.rbsociety.org.uk/

6. The Family Village - Retinoblastoma retinoblastoma. Where to Go to Chat with Others http://www.familyvillage.wisc.edu/lib_reti.htm

Retinoblastoma Where to Go to Chat with Others Learn More About It Personal Stories Web Sites ... Search AltaVista for "Retinoblastoma" Where to Go to Chat with Others KidsEyeCancerFriends R-BLASTOMA: Retinoblastoma Online Support Group Learn More About It OncoLink: Frequently-Asked Questions Related to Retinoblastoma A Parent's Guide to Understanding Retinoblastoma What is Retinoblastoma? Personal Stories Katya's Story Kari's Story Keenan's Story Web Sites Retinoblastoma International The National Retinoblastoma Research and Support Foundation Retinoblastoma Page at Onco-Link Genetic Testing for RB ... Kids Eye Cancer A global project designed to reach parents, families, medical professionals and key decision-makers worldwide. Die Retinoblastom Seite - The Retinoblastoma Page - German The Retinoblastoma Society - United Kingdom PDQ - Tratamiento - Pacientes - Retinoblastoma - Spanish Back to [ Q - R Family Village Home Library Coffee Shop ... Information Last Updated 17-August-2000 by familyvillage@waisman.wisc.edu Document Source: http://www.familyvillage.wisc.edu/lib_reti.htm

7. Retinoblastoma a single whitish elevation of the retina characteristic of retinoblastoma. Further evaluation (MRI, Xrays) showed no http://www.cancergenetics.org/rb.htm

CASE STUDY No. 5 Retinoblastoma LD was an otherwise healthy 9-month-old when his mother first noted that his left eye begun to turn out when he was tired. At the next routine examination, the pediatrician was not comforting, indicating to the parents that she was unable to complete her customary examination of the back of LD's left eye. A detailed ophthalmologic examination under general anesthesia revealed a single whitish elevation of the retina characteristic of retinoblastoma. Further evaluation (MRI, X-rays) showed no evidence that the tumor had spread in the orbit or had metastasized to other parts of the body. The plan was to treat LD with a course of radiation therapy. The parents were stunned to learn that their son has a cancer of the eye that may have been inherited from one of them. LD's parents then underwent ophthalmologic examination, which indicated that neither parent was affected. A three-generation pedigree was obtained: LD's father remembers being told that he had an aunt who died in childhood after going blind, but he did not know the cause. The family history also included a paternal uncle with prostate cancer. LD has an older brother and sister, both without any signs of eye problems or other significant medical concerns. Following the construction of the pedigree, the parents had a series of questions about retinoblastoma and its effect on LD and their family.

8. THE MERCK MANUAL, Sec. 19, Ch. 266, Neoplasms Information on an intraocular tumour from this online textbook. http://www.merck.com/pubs/mmanual/section19/chapter266/266d.htm

This Publication Is Searchable The Merck Manual of Diagnosis and Therapy Section 19. Pediatrics Chapter 266. Neoplasms Topics [General] Wilms' Tumor Neuroblastoma Retinoblastoma Retinoblastoma A malignant tumor that arises from the immature retina. Retinoblastoma occurs in 1/15,000 to 1/30,000 live births and represents about 2% of childhood malignancies. The disease may be inherited or result from a new germinal mutation. About 10% of patients have a family history of retinoblastoma and another 20 to 30% have bilateral disease; all of these (ie, 30 to 40% of the patients) may pass the trait to their children in an autosomal dominant fashion. These patients appear to have a constitutive genetic abnormality, which in at least 25% appears to be a deletion involving chromosome 13q14 (smaller undetectable abnormalities may be present in all these patients). A mutation in the other chromosome 13 (second hit) is thought to result in the tumor. Most of the remaining 60% of patients, with unilateral disease and no family history of retinoblastoma, have nonheritable disease. However, about 5% of these patients may also carry the gene for retinoblastoma with the risk of passing the trait to their children. Diagnosis Diagnosis is usually made by age 3 to 4 yr when a white reflex from the pupil (cat's-eye pupil) or strabismus is investigated. Both fundi must be closely examined by indirect ophthalmoscopy with the pupils widely dilated and the child under general anesthesia. The tumors appear as single or multiple gray-white elevations in the retina; tumor seeds may be visible in the vitreous. In almost all tumors, calcification can be detected by CT.

9. AIGR Associazione italiana genitori di bambini affetti da retinoblastoma. Presentazione dell'associazione e contatti utili, informazioni sulla legislazione in materia, news dal mondo della scienza, Faq, archivio news; accesso per non vedenti. http://www.aigr.it/

Caricamento in corso... attendere o cliccare qui

10. Open Angle Glaucoma Information in note form for clinicians. http://www.fpnotebook.com/EYE43.htm

Home About Links Index ... Editor's Choice Paid Advertisement (click above). Please see the privacy statement Ophthalmology Glaucoma Assorted Pages Glaucoma Acute Angle-Closure Glaucoma Open Angle Glaucoma Examination ... Intraocular cholinergic Open Angle Glaucoma Book Home Page Cardiovascular Medicine Dental Dermatology Emergency Medicine Endocrinology Gastroenterology General Medicine Geriatric Medicine Gynecology Hematology and Oncology HIV Infectious Disease Jokes Laboratory Neonatology Nephrology Neurology Obstetrics Ophthalmology Orthopedics Otolaryngology Pediatrics Pharmacology Prevention Psychiatry Pulmonology Radiology Rheumatology Sports Medicine Surgery Urology Chapter Ophthalmology Index Anterior Conjunctival Disorders Corneal Disorders Cardiovascular Medicine Examination Glaucoma Hematology and Oncology Injury Lacrimal Lens Lid General Neurology Pediatrics Pharmacology Prevention Pupil Retina Rheumatology Sclera Surgery Symptom Evaluation Vision Page Glaucoma Index Approach Narrow Angle Open Angle Rx See Also Glaucoma Narrow Angle Glaucoma Epidemiology Most common type of Glaucoma More common in older patients Rare under age 40 years Prevalence among those over 80 years old: 14% Risks Increasing age Black race: over age 40 years Caucasian: over age 65 years First Degree Relative with Glaucoma (4-16% Risk) Diabetes Mellitus Severe Myopia Nearsighted ness) Pathophysiology Increased aqueous humor production Aqueous outflow obstruction by microscopic blockages Normal chamber angles Symptoms Bilateral eyes affected but asymmetrically Asymptomatic until severe visual field or central loss

11. Darensretinoblastomapage A parent's thoughts and feelings about living with and dealing with a childhood cancerretinoblastoma. http://darensretinoblastomapage.homestead.com

Javascript is either disabled or not supported by this browser. This page may not appear properly. Daren's Story Daren's Story This page was last updated on: November 24, 2001 Retinoblastoma or RB as it is referred to, is a malignant tumor or cancer that develops in the cells of the eye. When it affects only one eye it is called unilateral retinoblastoma, and when both eyes are affected it is called bilateral retinoblastoma. In very young children who have only one eye affected at diagnosis, it is possible for a tumor to develop in the second eye several weeks or even months after the diagnosis of Retinoblastoma in the first eye. So follow up care is mandatory. The tumor usually develops before age 5 and some children are born with RB. Retinoblastoma can occur in two forms: genetic and non-genetic. Two most common signs are: an abnormal appearance of the pupil which tends to reflect light which looks like a cat's eye (instead of the red reflection in pictures the reflection is white) and secondly a squint. Pain is an uncommon symptom and apart from the eye problem the majority of children are otherwise well. Thank you for visiting our site.

12. Retinoblastoma Official resource which provides information aimed at parents and professionals regarding treatments available to combat this condition, with a specific focus on Canada. http://www.retinoblastoma.ca

The goal of this website is to inform parents and professionals of the resources available for Retinoblastoma with specific focus on Canadian resources. Our Mission Our mission is to expand awareness of retinoblastoma Profile Retinoblastoma (RB) is the most common eye cancer in children and it can be inherited. Although the most common eye cancer in children, retinoblastoma is quite rare and occurs in approximately 1 in every 20,0000 births. The goal with retinoblastoma is early detection to maximize the visual outcome and the quality of life of the affected child. Fortunately, the survival rate for affected children i s In order to achieve our goal of early detection, we believe it is important to educate the public and other health professionals on the signs that might manifest themselves with a child that has retinoblastoma. We encourage people to share this information with others as many of the signs are very subtle and may not be picked up even by a health professional, due to the rarity of this disease. EARLY DETECTION IS THE KEY!!!!

13. Retinoblastoma Treatment statement for Health professionals. retinoblastoma. Getthis document via a secure connection Intraocular retinoblastoma. http://www.meb.uni-bonn.de/cancer.gov/CDR0000062846.html

Treatment statement for Health professionals Retinoblastoma Get this document via a secure connection General Information Cellular Classification Stage Information ... Recurrent Retinoblastoma General Information This treatment information summary on retinoblastoma is an overview of prognosis, diagnosis, classification, and treatment. The National Cancer Institute created the PDQ database to increase the availability of new treatment information and its use in treating patients. Information and references from the most recently published literature are included after review by pediatric oncology specialists. Cancer in children and adolescents is rare. Children and adolescents with cancer should be referred to medical centers that have a multidisciplinary team of cancer specialists with experience treating the cancers that occur during childhood and adolescence. This multidisciplinary team incorporates the skills of the primary care physician, an ophthalmologist with extensive experience in the treatment of children with retinoblastoma, pediatric surgical subspecialists, radiation oncologists, pediatric medical oncologists/hematologists, rehabilitation specialists, pediatric nurse specialists, social workers, and others in order to ensure that children receive treatment, supportive care, and rehabilitation that will achieve optimal survival and quality of life. Guidelines for pediatric cancer centers and their role in the treatment of pediatric patients with cancer have been outlined by the American Academy of Pediatrics. [

14. Retinoblastoma Treatment statement for Health professionals This treatment information summary on retinoblastoma is an overview of prognosis, diagnosis, classification, and treatment. in the treatment of children with retinoblastoma, pediatric surgical subspecialists, radiation oncologists, pediatric http://www.meb.uni-bonn.de/cancernet/100993.html

Treatment statement for Health professionals Retinoblastoma Get this document via a secure connection General Information Cellular Classification Stage Information ... Recurrent Retinoblastoma General Information This treatment information summary on retinoblastoma is an overview of prognosis, diagnosis, classification, and treatment. The National Cancer Institute created the PDQ database to increase the availability of new treatment information and its use in treating patients. Information and references from the most recently published literature are included after review by pediatric oncology specialists. Cancer in children and adolescents is rare. Children and adolescents with cancer should be referred to medical centers that have a multidisciplinary team of cancer specialists with experience treating the cancers that occur during childhood and adolescence. This multidisciplinary team incorporates the skills of the primary care physician, an ophthalmologist with extensive experience in the treatment of children with retinoblastoma, pediatric surgical subspecialists, radiation oncologists, pediatric medical oncologists/hematologists, rehabilitation specialists, pediatric nurse specialists, social workers, and others in order to ensure that children receive treatment, supportive care, and rehabilitation that will achieve optimal survival and quality of life. Guidelines for pediatric cancer centers and their role in the treatment of pediatric patients with cancer have been outlined by the American Academy of Pediatrics. [

15. Retinoblastoma . What is retinoblastoma? retinoblastoma......Treatment statement for Patients. retinoblastoma. Get this document viaa secure connection http://www.meb.uni-bonn.de/cancer.gov/CDR0000062683.html

Treatment statement for Patients Retinoblastoma Get this document via a secure connection Description Stage Explanation Treatment Option Overview ... About PDQ Description What is retinoblastoma? Retinoblastoma is a malignant (cancerous) tumor of the retina. The retina is the thin nerve tissue that lines the back of the eye that senses light and forms images. Although retinoblastoma may occur at any age, it most often occurs in younger children, usually before the age of 5 years. The tumor may be in one eye only or in both eyes. Retinoblastoma is usually confined to the eye and does not spread to nearby tissue or other parts of the body. Your child's prognosis (chance of recovery and retaining sight) and choice of treatment depend on the extent of the disease within and beyond the eye. Retinoblastoma may be hereditary (inherited) or nonhereditary. The hereditary form may be in one or both eyes, and generally affects younger children. Most retinoblastoma occurring in only one eye is not hereditary and is more often found in older children. When the disease occurs in both eyes, it is always hereditary. Because of the hereditary factor, patients and their brothers and sisters should have periodic examinations, including genetic counseling, to determine their risk for developing the disease. A child who has hereditary retinoblastoma may also be at risk of developing a tumor in the brain while they are being treated for the eye tumor. This is called trilateral retinoblastoma, and patients should be periodically monitored by the doctor for the possible development of this rare condition during and after treatment. If your child has retinoblastoma, particularly the hereditary type, there is also an increased chance that he or she may develop other types of cancer in later years. Parents may therefore decide to continue taking their child for medical check-ups even after the cancer has been treated.

16. Retinoblastoma Basics retinoblastoma is the most common intraocular cancer of childhood and effects approximately......The New York Eye Cancer Center is one of the premier centers in the country for the treatment of retinoblastoma and other pediatric eye tumors. It is located in New York City. retinoblastoma. http://www.eyecancer.com/conditions/Retinal%20Tumors/retino.html

The Editor: Dr. Paul Finger Patient Information: Conditions The Eye Glossary FAQs ... Links Treatments: Radiation Enucleation Innovations Studies ... Home Retinoblastoma Description: Retinoblastoma was the first cancer to be directly associated with a genetic abnormality (Deletions or mutation of the q14 band of chromosome 13). Retinoblastoma can occur sporadically (without a family history) or it can be inherited (with a family history). If a genetic mutation is found there is a 45-50% chance that the parents will have another child with retinoblastoma. If there is no family history and no mutation is found, the risk of having a second child with retinoblastoma is 2-5%. The average age of children with retinoblastoma is 18 months. More than 75% of children are first noted to have a (which the doctors call leukocoria Treatment: Retinoblastoma treatment requires the cooperation of an ophthalmic oncologist, pediatric oncologist, and radiation therapist. Over the last 30 years, treatment has evolved from simple

17. Untitled Document http://www.retinoblastoma.com/

18. Welcome To The Eye Cancer Network An educational site for patients with eye cancer and the health professionals who care for them. Information on eye tumors including retinoblastoma, choroidal melanoma, iris tumors, conjunctival tumors, and orbital tumors. http://www.eyecancer.com/

The Editor Dr. Paul Finger Patient Information: Tumors The Eye Dictionary FAQs ... Links Treatments: Radiation Enucleation Innovations Studies ... Home Welcome to the Eye Cancer Network An educational web-site about the diagnosis and treatment of ocular tumors, eye cancer, and orbital diseases for patients, their families and the health professionals who care for them. Information on Eye Tumors Choroidal Melanoma Retinoblastoma Choroidal Hemangiomas ... An Important Message from The Editor Let Us Help You!! Diagnosis, Treatments Innovations Ongoing Studies ... ECN Case Interesting Cases Great Related links Should I Get A Second Opinion? Interactive Bulletin Boards Who's Who - ... Social Service Search WWW Search eyecancer.com

19. Transpupillary Thermotherapy (TTT) And Transscleral Thermotherapy (TSTT) Research information on laser treatments for intraocular tumors, such as choroidal melanoma, retinoblastoma, and hemangioma. http://www.ioi.knaw.nl/~rem/

This site will be continued on http://members.ams.chello.nl/rem/tstt

20. Retinoblastoma Key words retinoblastoma, eye, cancer, tumor, enucleation. PeterK. Kaiser, MD (1), Ingrid U. Scott, MD, MPH (1), Joan M. O'Brien http://www.djo.harvard.edu/meei/PI/RB/RB.html

Key words: retinoblastoma, eye, cancer, tumor, enucleation Peter K. Kaiser, MD (1), Ingrid U. Scott, MD, MPH (1), Joan M. O'Brien, MD (2), and Timothy G. Murray, MD (1) for the (1) Bascom Palmer Eye Institute, University of Miami School of Medicine, Miami, FL (2) University of California at San Francisco School of Medicine, San Francisco, CA Although the disease is very rare, retinoblastoma (RB) is the most common eye tumor in children, and the third most common cancer overall affecting children. Retinoblastoma is a disease that causes the growth of malignant tumors in the retinal cell layer of the eye. The frequency that retinoblastoma occurs has increased over the past 60 years. It now occurs in 1 out of every 15,000 live biths. Two hundred fifty to 350 new cases are diagnosed each year in the US with over 90 percent of cases presenting before the age of 5 years. Untreated, retinoblastoma is almost always fatal; therefore, early diagnosis and treatment is critical in saving lives and preserving visual function. The treatment of retinoblastoma depends upon whether or not one or both eyes are involved and the extent of tumor. Although removing the eye (enucleation) remains a frequent treatment for retinoblastoma, conservative strategies are being increasingly employed. With earlier detection and improved treatment modalities, the prognosis for vision and life in patients with retinoblastoma has improved significantly in the last twenty years.

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