Geometry.Net - Basic_C: Cystic Fibrosis

Official Site For CFF Jack Buck Book Event
Charity fund raiser sponsored by the announcer. Includes welcome, book of stories and poems for sale, details about the Gateway cystic fibrosis Foundation and CF, and a biography.
http://www.jackbuckbook.com/

Extractions: 7:00A.M.. to 11:30P.M. Click here for additional memorial information from KMOX Radio. It clinched the 1985 National League Championship Series for the Red Birds. In July 2002, he will be honored at the 33 rd Annual Jack Buck Golf Classic. His tournament attracts more than 300 golfers every year, and has raised $7 million for Cystic Fibrosis research. This year he has stepped up to the plate again. with 100% of the proceeds going directly to Cystic Fibrosis Foundation. For his own enjoyment, Jack has been composing poetry most of his life. Few people outside of his own family have had the opportunity to see his poems. They cover far more subjects than baseball and other sports. Jack has donated eighteen of his poems to the Cystic Fibrosis Foundation to be published and used in the effort to generate donations through this site and other means of distribution.
Living With Cystic Fibrosis
Site by a young man with CF.Category Health Conditions and Diseases Personal PagesI have cystic fibrosis. I was diagnosed when I was born (1978). Get yourfree cystic fibrosis email address for life! First Name Last Name
http://frontpage.velocity.net/yanc/

Extractions: Hi, My name is Yancee Mathews. I have Cystic Fibrosis. I was diagnosed when I was born (1978). I created this web page for everyone to come and view my thoughts on living with CF. If you can't find what your looking for here, feel free to E-mail me, yanc@velocity.net You are visitor since February 28, 1998. Greater Strides Go to the Cystic Fibrosis Foundation website to find your local CF walk location and register. The Walk in Erie, PA will be at Presque Isle Park. Saturday, May 17, 2003. Starts at 11:00 am. If you live in erie, please come and join me in the walk to cure CF. Login to CysticFibrosis mail User Name: Password: Technical Support Help Password Reminder Sign Up with CysticFibrosis Mail Get your free cystic fibrosis e-mail address for life! First Name: Last Name: Thanks for visiting! Come back again. privacy
Cystic Fibrosis Australia - Education And Research Organisation - CFA - National
cystic fibrosis Australia.
http://www.cysticfibrosisaustralia.org.au/

Extractions: CFA is a national body comprising member State Associations. The national office is located in North Ryde, New South Wales. The national organisation assists the member organisations to achieve common objectives by developing national education programs and collecting and distributing information about Cystic Fibrosis (CF) at national and international levels. This allows member organisations to efficiently and effectively direct their activities to the provision of high quality health and welfare services to children and young adults with CF and their families.
Cystic Fibrosis
Similar pages How To Handle Living with cystic fibrosisHow to Handle Living With cystic fibrosis. Welcome to my website! For othergreat links about cystic fibrosis, here are some websites I found useful!
http://www2.dal.ca/distsite/frank/cf.html

Extractions: Computer Labs Return Links Academic Computing Services Computing Services Cystic Fibrosis I have obtained some very comprehensive information about Cystic Fibrosis and wish to share it with others via these pages. The information was obtained from LISTSERV@YaleVM.CIS.Yale.Edu, which is home of the CYSTIC-L mailing list, in which my late colleague and friend Frank Smyth participated for some time. I would like to thank those members of CYSTIC-L who pointed me in the direction of this information. I would also like to thank those members who contributed to this information. Also, special thanks to Antony Dugdale who created CYSTIC-L and continues to make it possible. Here are some excerpts from the CYSTIC-L documents: A Basic Description of Cystic Fibrosis How Cystic Fibrosis is Diagnosed Why an Individual Gets Cystic Fibrosis Sources of Further Information I am also including a link to Robert Calhoun and Michael Ernst's CF-Web Page The Cystic Fibrosis Ibuprofen Laboratory at Case Western Reserve University has been kind enough to provide a link to these pages from their "Relevant Sites" page.
The Cystic Fibrosis Association Address Book Homepage
of Panzytrat®, The International cystic fibrosis (Mucoviscidosis)Association ICF(M)A. International Directory Homepage. TOC. Access
http://www.access.ch/cfaddresses/welcome.html

Extractions: ICF(M)A International Directory Homepage Access the Table of Contents of the International Directory Download the entire International Directory to your computer Send changes of addresses to the International Directory Coordinator and the Secretary of ICF(M)A Acknowledgement and gratitude to the past sponsor: F.Hoffmann-La Roche Ltd.
Cystic Fibrosis Disease Information On Symptoms, Treatment And Causes
Concise factsheet on causes, symptoms and treatment of cystic fibrosis, this factsheet can also be downloaded in Acrobat format
http://hcd2.bupa.co.uk/fact_sheets/Mosby_factsheets/Cystic_fibrosis.html

Extractions: January, 2003 Download this factsheet Cystic fibrosis (CF) is an inherited condition. It can have many symptoms, affecting different parts of the body, particularly the lungs and digestive system. CF is the most common inherited disease in white people, affecting about 1 in every 2,500 children born. It is much more rare in people of African or Asian descent. About one in five babies with CF are diagnosed at birth, when their gut becomes blocked by extra thick meconium (the black tar-like bowel contents that all babies pass soon after birth). This condition may need surgery. Just over half of people with CF are diagnosed as babies because they are not growing or putting on weight as they should. This is because the pancreas is not producing chemicals (enzymes) which pass into the gut as food leaves the stomach. Without these enzymes, the fat in food cannot be properly digested. In children who are affected, the fat passes straight through the gut. The child does not benefit from the energy from the fat. Since the stools contain an excess of fat, they are oily and very smelly. CF is a "multi-system" disease, meaning that it affects many body organs. However, most of the symptoms are to do with the lungs and the gut.
Cystic Fibrosis Marathon Team
Het CF marathon team dat in 2000 in New York mee deed.
http://www.nikhef.nl/~jank/NY2000/

Extractions: Na een jaar voorbeidingen zou Maarten Koeman ondanks zijn aandoening cystic fibrosis (CF) , in november 2000 voor de 5e maal de marathon van New York gaan lopen. Samen met een groep van 10 mede-lopers zou de 33-jarige hardloper in november 2000 in New York laten zien waar een enorme dosis doorzettingsvermogen toe kan leiden. Maar het liep allemaal een beetje anders....... Een week voor vertrek naar New York werd Maarten Koeman voor het eerst in 17 jaar opgenomen in het ziekenhuis en kon zelfs niet mee als supporter.
Cystic Fibrosis
cystic fibrosis Links and Information
http://www.goodgulf.com/cystic.html
Welcome To The International Cystic Fibrosis Support Group.
Purpose is to disseminate information concerning cystic fibrosis, to give support to those involved Category Health Conditions and Diseases Support GroupsFeature Story. Rick Gropper 04 Meeting the challenge. Rick Gropper´04. A sociology major, with a minor in economics, Ridgewood
http://cf.conncoll.edu/

Extractions: THOSE WHO POST AND/OR READ POSTS TO THE CONNCOLL CYSTIC FIBROSIS SUPPORT LIST AND WEB PAGE AGREE TO SAVE HARMLESS CONNECTICUT COLLEGE FROM CIVIL AND OTHER LEGAL LIABILITIES THAT COULD ARISE FROM POSTS SENT TO THE LIST AND WEB PAGE. INFORMATION SENT TO THE LIST AND WEB PAGE SHOULD NOT BE CONSTRUED AS MEDICAL ADVICE. PARTICIPANTS SHOULD GET MEDICAL INFORMATION ONLY FROM MEDICAL PROFESSIONALS
Your Genes, Your Health
Offers a DNA Learning Center's multimedia guide to genetic, inherited disorders Fragile X syndrome, Marfan syndrome, cystic fibrosis and hemophilia are discussed in detail.
http://www.yourgenesyourhealth.org
The Cystic Fibrosis (CF) Center At Stanford
Information on services provided, ongoing clinical trials, news from and about individuals with CF Category Health Conditions and Diseases Medical Facilitiescystic fibrosis Center at Stanford research and clinical trials, Pediatric and AdultCF Programs, CF sweat chloride tests, education regarding pulmonary issues
http://cfcenter.stanford.edu/
Fish Oils And Emphysema/cystic Fibrosis
Summaries of the latest research concerning fish oils and emphysema and cystic fibrosis.
http://www.oilofpisces.com/emphysema.html

Extractions: BOSTON, MASSACHUSETTS. The idea that fish and fish oils may protect against lung disease developed from early studies of the dietary habits of Greenland Eskimos. Dr. D.F. Horrobin hypothesized that the high content of omega-3 fatty acids in the Eskimo diet is at least partially responsible for the low prevalence of lung disease in this population group. This makes biological sense inasmuch as omega-3 fatty acids (notably from fish and fish oils) are known to inhibit the synthesis of the inflammatory eicosanoids involved in lung diseases. Dr. Schwartz concludes that there is a good case for fish and fish oils being protective against the development of chronic lung diseases, but that more research is needed to establish conclusive proof of benefits. NEW YORK, NY. Seriously ill cystic fibrosis (CF) patients cannot absorb fats and other nutrients properly and therefore often need infusions of essential fatty acids. These infusions are most often based on linoleic acid as many CF patients have been found to have a deficiency of this omega-6 fatty acid. There is now substantial evidence that long-chain omega-3 fatty acids found in fish oils can suppress inflammatory processes such as those involved in CF.
Cystic Fibrosis
of human genes and disorders Information Fact sheet from the National Heart, Lungand Blood Institute, NIH The cystic fibrosis foundation information and links.
http://www.ncbi.nlm.nih.gov/disease/CF.html

Extractions: CF is caused by a defective gene, which codes for a sodium and chloride (salt) transporter found on the surface of the epithelial cells that line the lungs and other organs. Several hundred mutations have been found in this gene, all of which result in defective transport of sodium and chloride by epithelial cells. The severity of the disease symptoms of CF is directly related to the characteristic effects of the particular mutation(s) that have been inherited by the sufferer. CF research has accelerated sharply since the discovery of CFTR in 1989. In 1990, scientists successfully cloned the normal gene and added it to CF cells in the laboratory, which corrected the defective sodium chloride transport mechanism. This technique - gene therapy - was then tried on a limited number of CF patients. However this treatment may not be as successful as originally hoped. Further research will be required before gene therapy, and other experimental treatments, prove useful in combating CF.
Cystic Fibrosis Gene Therapy: Oxford Gene Medicine
Focused on the development gene therapies for diseases of the airway, such as asthma, lung cancer and in particular, cystic fibrosis (CF). Work includes formulation development, reagent production, preclinical testing, and human clinical trials.
http://users.ox.ac.uk/~genemed/default.htm

Extractions: Click to enter Cystic Fibrosis is one of the most common genetic diseases. Research is directed towards developing a treatment for the pulmonary symptoms of cystic fibrosis using, primarily, non-viral (plasmid/liposome) delivery systems for gene transfer. Laboratory studies focus on understanding the factors which limit gene transfer and developing improved gene transfer reagents and delivery methods. These reagents are tested in transgenic mouse models prior to entering optimal formulations into an ongoing clinical trials programme
MSU DNA LAB-genetic Testing HOME
Since 1993, tests for cystic fibrosis, hereditary hemochromatosis, apolipoprotein E, fragile X syndrome, and methylenetetrahydrofolate reductase genetic testing. Michigan State University, College of Human Medicine, East Lansing, MI.
http://www.phd.msu.edu/DNA/

Extractions: TEST INFORMATION FOR: Cystic Fibrosis Hereditary Hemochromatosis Apolipoprotein E Genotyping Fragile X Syndrome Methylenetetrahydrofolate reductase Welcome to the MSU DNA Diagnostic Program website! Our program is located on the campus of Michigan State University in the Department of Pediatrics and Human Development College of Human Medicine Since 1993, we have been dedicated to providing quality genetic testing at a reasonable cost. We strive to make available the most recent information regarding the tests we provide and are continually expanding our testing services. Our laboratory director is board certified by the American Board of Medical Genetics. Our staff also includes a Masters trained genetic counselor and laboratory technicians, all of who are available to assist you with questions regarding our laboratory services. We provide test results and risk estimation based on DNA test results and family history. Abnormal results are promptly called to the referring physician/counselor. Final reports are sent by mail and/or fax. Please choose from the available options for more information.
112 Voor Cystic Fibrosis
Actiedag van hulpverleners voor CF patienten
http://www.112actie.zaandamnet.nl/
Cystic Fibrosis
Article detailing therapeutic options for comanagement.
http://www.thorne.com/altmedrev/fulltext/cystic.html

Extractions: Cystic Fibrosis: Therapeutic Options For Co-management. Patrick L. Bufi, N.D. Abstract Introduction Cystic fibrosis (CF) is the most common lethal autosomal recessive disease found in the Caucasian population, with a frequency of approximately one in 2,500 births. There are at least 500 different genetic mutations associated with the disease, thus making homozygous and heterozygous screening procedures difficult. However, approximately 70% of the mutations are found to be delta F508, making it the most common CF mutation. Delta F508 mutation is consistently associated with a single haplotype "B" which seems to support a "selective advantage" hypothesis. The possible selective advantage for the carriers of CF mutations (heterozygote advantage) could be a defense against the profuse diarrhea and fluid loss seen in cholera. Other selective advantage ideas exist as well. The hypothesis of increased resistance to human strain Mycobacterium tuberculosis, increased resistance to influenza, and protection against bronchial asthma in childhood and early adult life all present interesting possibilities. The primary CF defect is expressed as altered ion transport via the cystic fibrosis transmembrane conductance regulator (CFTR), which is the protein regulating cyclic-AMP-mediated chloride conductance at the apical membranes of secretory epithelia.
Copernicus Therapeutics, Inc.
Developing human gene therapy products for cystic fibrosis and hemophilia B and DNA vaccinations. The company creates proprietary PLASmin Complexes which are efficient nonviral vectors and REPLIsome vectors which allow replication of non-viral vectors.
http://www.cgsys.com/
NHLBI, Facts About Cystic Fibrosis
Facts About cystic fibrosis Table of Contents. What Is cystic fibrosis?How Common Is CF? For More Information. WHAT IS cystic fibrosis?
http://www.nhlbi.nih.gov/health/public/lung/other/cf.htm

Extractions: Facts About Cystic Fibrosis Cystic fibrosis (CF) is a chronic, progressive, and frequently fatal genetic (inherited) disease of the body's mucus glands. CF primarily affects the respiratory and digestive systems in children and young adults. The sweat glands and the reproductive system are also usually involved. On the average, individuals with CF have a lifespan of approximately 30 years. CF-like disease has been known for over two centuries. The name, cystic fibrosis of the pancreas, was first applied to the disease in 1938. Back to Table of Contents According to the data collected by the Cystic Fibrosis Foundation, there are about 30,000 Americans, 3,000 Canadians, and 20,000 Europeans with CF. The disease occurs mostly in whites whose ancestors came from northern Europe, although it affects all races and ethnic groups. Accordingly, it is less common in African Americans, Native Americans, and Asian Americans. Approximately 2,500 babies are born with CF each year in the United States. Also, about 1 in every 20 Americans is an unaffected carrier of an abnormal "CF gene." These 12 million people are usually unaware that they are carriers. Back to Table of Contents WHAT ARE THE SIGNS AND SYMPTOMS OF CF?
Greg Unger - In Loving Memory
A family shares the memory of a loved one through stories, video archive, photo gallery, and information on cystic fibrosis disease. 1980 2000.
http://www.gregunger.com/

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