21. Steve Fowler - Living With ALS A comprehensive look at the topic Amyotrophic lateral sclerosis http://www.emdbd.com/stevefowler/e_als2.htm

ALS is a deadly neuro-degenerative disease that can strike anyone and for which there is no known cure.Visit these sites to learn more about ALS and what you can do to help in the fight. ALS-TDF seeks out and supports promising therapies to slow, arrest, and cure ALS. Hope for ALS is a non-profit corporation dedicated to funding research in the battle against ALS. My Experience With ALS Chronological Efforts At Treatment And The Results Page 2 of 2 Previous First symptom March '96-inability to recover from exercise. July '96-cramping of hands and abdominal muscles accompanying weakness of right thumb. January '97 - noticeable breathing failure while playing saxophone. February '97 - visited general practitioner to test for asthma - referred to neurologist. February '97 - began to experience sudden and profound weight loss (cachexia). March '97 - diagnosed with ALS - referred to UCLA for second opinion. May '97 - Diagnosis of probable ALS at UCLA after 3 EMGs and neurological examination.

22. Guest Book My Grandfather has ALS (Lou Gehrig's disease), and I now I understand the extent ofthis disease. amyotrophic lateral sclerosis, (aka Lou gehrigs Diease), ALS http://www.lougehrigsdisease.net/als_guest_book.htm

Offering hope to people with Amyotrophic Lateral Sclerosis Home What is ALS? ALS News Causes of ALS ... About Lou [ Guestbook ] You Can Help Inspiration Doug's Journal ALS Survival Guide Guestbook This is a public guestbook so visitors can share their thoughts with others. If you want to leave your comments, please fill out the form below. Guestbook comments are immediately below the form. New guestbook entries are on this page. Older Guestbook entries can be viewed here: from 12-04-98 to 01-30-99 ; from 02-01-99 to 04-30-99 ; from 05-01-99 to 02-29-00 ; from 03-01-00 to 2-28-01 ; from 03-01-01 to 07-31-01 Guestbook Form: Name City, State, Country Email Address (optional) Comments Click the Submit button ONCE and then wait for the confirmation page (up to 30 seconds.) NOTE : After you return to this page, you will need to reload or refresh with your browser in order to see your additions to the guest book. Name: tracey woods Address: framingham, ma Email: woodsalta@rcn.com

23. ALS Steven Shackel Frequently Asked Questions Uebersetzung Eric Pfister Bearbeitung WebPage Kurt Steiner Was ist ALS/MND ? http://www.sunweb.ch/custom/als-mnd.ste/fragen.htm

Steven Shackel: Frequently Asked Questions Uebersetzung: Eric Pfister Bearbeitung Web-Page: Kurt Steiner Update 08.06.2000 ALS/MND: Häufig gestellte Fragen Klicken Sie hier für Links zu anderen ALS/MND - Informations-Websites. Was ist ALS/MND ALS/MND - Amyotrophe Lateralsklerose oder die Erkrankung des Systemes der Motoneuronen ist eine progressive, üblicherweise tödlich verlaufende neuromuskuläre Krankheit. Sie greift diejenigen motorischen Nervenzellen im Rückenmark und tieferen Gehirn (Stammhirn) an, die die Signale vom Gehirn zu den willkürlichen Muskeln im ganzen Körper übermitteln. Wenn die motorischen Nervenzellen aufgrund von ALS/MND absterben, ist die Fähigkeit des Gehirns, die Muskelbewegungen zu kontrollieren, verloren. Wenn die Muskeln keine Impulse mehr empfangen, werden sie schwächer und bauen sich ab (Atrophie). ALS/MND ist auch unter dem Namen Lou Gehrig's Disease und unter Maladie de Charcot bekannt, nach Jean-Marie Charcot, dem französischen Neurologen, der die Krankheit zum ersten Mal 1869 beschrieb. Was sind die Symptome von ALS/MND Die betroffenen Muskelgruppen und die Reihenfolge, in welcher sie betroffen werden, variiert von Person zu Person. Frühe Symptome schliessen normalerweise ein: Trippeln/Straucheln, Dinge fallen lassen, abnormale Müdigkeit in den Armen und/oder Beinen, verschwommene Sprache, Muskelkrämpfe und Zuckungen (Faszikulationen genannt) und Stimmungsschwankungen inklusive unkontrollierbare Phasen von Lachen oder Weinen. Die Hände und Füsse können zuerst betroffen sein und verursachen so Schwierigkeiten beim Gehen oder beim Gebrauch der Hände für alltägliche Aktivitäten wie Anziehen, Waschen, Knöpfe schliessen.

24. Glaxo Neurological Centre Guestbook The Glaxo Neurological Centre Guestbook, Non medical advice and information for people with neurological conditions and those who care for them http://glaxocentre.merseyside.org/Guestbook.Archive.html

Guestbook Archive May 1997 to 31 st Dec2000 happy new year to all at the g.n.c. from frank frankthomas36@hotmail.com liverpool, merseyside, england, Mon Dec 25 17:06:25 2000 Please tell me all you know about myolitis. hanks, DeeDe deandglenn@iopener.net Metairie, Louisiana, United States of America, Sun Dec 24 08:43:43 2000 Just started to look. WandaBriggs@hotmail.com Shenandoah Jct, WV, USA, Wed Dec 20 19:43:35 2000 Hi, I was wondering if you knew of any Tourette's Syndrome support groups or societies in the San Francisco Bay Area, or if you had a website i could go to that had a list of support groups in my area. Thanks for your help. Fremont, CA, USA, Wed Dec 20 06:13:35 2000 Getting ready to take a look.. thanks rgatesfarm10@hotmail.com Attica, Ind, USA, Tue Dec 19 13:55:28 2000 seeking info about fibramyalgia chatterrock@webtv.com ft myers beach, lee fl, usa, Sun Dec 17 12:27:50 2000 I found the site very informative but could not find what I was looking for. I had Shingles in Sept which affected the left side of my head. Since the start I have been suffering from acute headaches. The left side of my face has been left paralysedand painful. The drugs which have been prescribed for me have had no effect. Carbamazapine and Amatriptiline. Could you recomend a site where I might get some more info from. Thank you Ken Savory info@millofeyrland.com

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