1. Cystic Fibrosis Foundation... Adding Tomorrows Every Day Seeking the means to cure and control cystic fibrosis and to improve the quality of life for those Category Health Conditions and Diseases Foundations......•, cystic fibrosis Foundation Therapeutics Awards $1.5 million to Inologicfor the Preclinical Development of INO4995. •, CF Foundation http://www.cff.org/

Cystic Fibrosis Foundation Therapeutics Awards $1.5 million to Inologic for the Preclinical Development of INO-4995 CF Foundation Launches National Volunteer Leadership Initiative Highlights from the North American CF Conference Are Available About the Cystic Fibrosis Foundation Cystic Fibrosis Foundation Therapeutics Awards $1.5 million to Inologic for the Preclinical Development of INO-4995 CF Foundation Launches National Volunteer Leadership Initiative Highlights from the North American CF Conference Are Available About the Cystic Fibrosis Foundation ... Special Event Prizes

2. Cystic Fibrosis Resources For Daily Living And Information A cystic fibrosis community for patients, families and caregivers offering news,messageboards, daily living, associations, cf centers, fund raisers, books and http://www.cysticfibrosis.com/

Welcome! Join our Internet community for cystic fibrosis patients, families and loved ones. CF is a genetic disorder that affects the respiratory, digestive and reproductive systems. The Cystic Fibrosis Foundation promotes "Great Strides" in your area. [click here] Welcome To TransplantBuddies.com. Sharing feelings and thoughts about the transplant process is what we are all about. Cysticfibrosis.com's Claims to Fame: YAHOO! rates us... #1 hot site on Yahoo!/Google Featured in the Washington Post April, 2003 General Health Tips: Medrise and Healthology: Focus on Children's Health Medrise and Healthology: Focus on Teen Health Medrise and Healthology: Focus on Diabetes MedlinePlus Cystic Fibrosis Health News ... Doctors and patients learning about CF test Information in a new brochure from the American College of Obstetricians and Gynecologists proves valuable as cystic fibrosis screening catches on. New Theory Proposed for Cystic Fibrosis Infections TAKING FLIGHT - INSPIRATIONAL STORIES OF LUNG TRANSPLANTATION by Joanne Schum ISBN 1-55369-684-0 http://www.lungsforlife.org

3. Cystic Fibrosis Trust: Home This website is for everybody in the cystic fibrosis community Living with CFhas practical information for families and gives advice about nutrition and http://www.cftrust.org.uk/

Justgiving.com Now you can create your own sponsorship webpage to raise funds for the Cystic Fibrosis Trust. Cystic Fibrosis Trust Helpline s ... on any aspect of Cystic Fibrosis This website is for everybody in the Cystic Fibrosis community Living with CF has practical information for families and gives advice about nutrition and physiotherapy. Fundraising contains information about how you can help us find a cure, either as an individual or as an organisation. Detailed, scientific information about CF can be found in Medical Research . Children, young people and adults can meet and have discussions in Meeting Point CF Trust tells you who we are and what we do. play / pause Click here for the latest news on the CF Trust Awards 2003 We are very, very sad that Alice has passed away but we know her music will live on - she is a tribute to all those with CF and was always an inspiration to her family and friends.

4. Cystic-L - Cystic Fibrosis Info & Support CysticL's popular e-mail list server and support page for CF patients, their friends, and families includes archives and discussion group. http://www.cystic-l.org/

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5. MEDLINEplus: Cystic Fibrosis Gene Therapy and cystic fibrosis (cystic fibrosis Foundation). New Theory Proposed for cystic fibrosis Infections http://www.nlm.nih.gov/medlineplus/cysticfibrosis.html

Skip navigation Other health topics: A B C D ... List of All Topics Cystic Fibrosis Contents of this page: From the NIH General/Overviews Diagnosis/Symptoms Prevention/Screening ... Teenagers Search MEDLINE for recent research articles on Cystic Fibrosis You may also be interested in these MEDLINEplus related pages: Lung Transplantation Genetics/Birth Defects Lungs and Breathing From the National Institutes of Health Facts About Cystic Fibrosis (National Heart, Lung, and Blood Institute) General/Overviews Cystic Fibrosis (Patient Education Institute) - - requires Flash plug-in Also available in: Spanish JAMA Patient Page: Cystic Fibrosis (American Medical Association) What Is Cystic Fibrosis? (Mayo Foundation for Medical Education and Research) Clinical Trials ClinicalTrials.gov: Cystic Fibrosis (National Institutes of Health) Clinical Trials (Cystic Fibrosis Foundation) Commonly Asked Questions About Clinical Trials (Cystic Fibrosis Foundation) Diagnosis/Symptoms Sweat Testing Procedure and Commonly Asked Questions (Cystic Fibrosis Foundation) Trypsinogen Test (American Association for Clinical Chemistry) Disease Management Home Oxygen Therapy (American Association for Respiratory Care) Prevention/Screening Cystic Fibrosis Testing: The Decision is Yours (American College of Obstetricians and Gynecologists) Cystic Fibrosis Testing: What Happens If Both My Partner and I are Carriers?

6. Cystic Fibrosis : Cystic Fibrosis Information cystic fibrosis Over 1 671 links! One of the most complete sites about CF available! Excellent for people with CF, parents, relatives, friends, and students. Some pages are really easy to read, others are very technical medical pages. cystic fibrosis. Be notified. when this. page changes http://personal.nbnet.nb.ca/normap/CF.htm

Cystic Fibrosis Be notified when this page changes it's private powered by ChangeDetection Hi! I made this page because I have CF. I am a 41 y.o. woman, have been married for 21 years, and am fortunate enough to have a beautiful, healthy 19 year old daughter without CF. I would like to educate and inform as many people as I can about CF. It is a genetic disease that affects approximately 3,000 people in Canada, and 30,000 in the US, plus many more throughout the world. It is a disease that affects the exogenous secreting glands of the body, and generates thickened secretions, therefore blocking certain normal functions of certain organs. The organs most affected are the lungs and pancreas, therefore affecting breathing and digestion. There is no cure as of yet, but we hope there soon will be. Research is ongoing, and great strides are being made! Whereas 30 years ago, not many people with CF lived past childhood, nowadays many can live into their 30's. Still too many are dying young though...sadly. Please support CF research! Join Cystic-L, the best e-mail discussion/support group on CF. This is for people with CF (pwcf), parents of children with CF, spouses of, children of, and friends of pwcf, and for anyone else just wanting to learn more about it, such as students, teachers, medical personnel, etc...if you have any questions that may not have been answered here on these pages, please join our group! I have been with them since August of 1996, and love it!

7. Cystic Fibrosis 101 - Over 250 Links Related To CF It was initiated by the cystic fibrosis Genetic Analysis Consortium in 1989 to increase and facilitate communications http://personal.nbnet.nb.ca/normap/CF101/home.htm

This page has been changed. For CF information, please go to: http://www3.nbnet.nb.ca/normap/CF.htm (Click on link above) Don't forget to update your Favorites, Bookmarks, and Web Page Links!

8. Cystic Fibrosis Research, Inc. (CFRI) News about CF research. Site also has a newsletter available.Category Health Conditions and Diseases cystic fibrosis......Enter here http://www.cfri.org/

9. Nederlandse Cystic Fibrosis Stichting Een ernstige aangeboren aandoening, wordt meestal ontdekt in de eerste twee levensjaren. http://www.ncfs.nl/

moveTo(0,0);resizeTo(screen.width,screen.height); Website van de Nederlandse Cystic Fibrosis Stichting met Engelstalig gedeelte. Informatie over Cystic Fibrosis (CF), NCFS, vakanties, Golden Earring, andere websites op het gebied van Cystic Fibrosis enz. Nederlandse Cystic Fibrosis Stichting, NCFS, Cystic Fibrosis, CF, Taaislijmziekte, Mucoviscidose, Mucoviscidosis, Cystische Fibrose, Kystische Fibrose, Nederlandse Cystic Fibrosis Vereniging, Nederlandse Cystic Fibrosis Organisatie, CF Vereniging, CF Organisatie, Dutch Cystic Fibrosis Foundation, Dutch Cystic Fibrosis Organization, Dutch Cystic Fibrosis Organisation, Dutch CF Organization, Dutch CF Organisation, Dutch CF Association

10. NHLBI Home Page: Jump To New Location http://www.nhlbi.nih.gov/nhlbi/lung/other/gp/cystfib.htm

The NHLBI Web Site has moved. Please reset your bookmarks. This page will take you to the new location in a few seconds. If you wish to go now, select the first link below. To go directly to a certain Web page, select either the site index or the search engine link. The new home page. The new site index. The new search engine. Note to users of screen readers and other assistive technologies: Please report any accessibility problems here.

11. Cystic Fibrosis In Beweging: Welkom! Wil de bekendheid van de ziekte cystic fibrosis onder het Nederlandse publiek te vergroten en financi«le middelen verwerven voor medisch wetenschappelijk onderzoek en projecten van de NCFS. http://www.cfib.nl/

KIES HIER WAAR U HEEN WILT! Home Cystic Fibrosis Cystic Fibrosis in Beweging Geld waarvoor? Evenementen CFiB in de media Ontmoeting met Donateur? Contact met CFiB Actie resultaten Bankrekeningnummer Cystic Fibrosis is de meest voorkomende erfelijke aandoening in Nederland met een potentieel dodelijke afloop op jonge leeftijd. In Nederland lijden 1000 tot 1200 mensen aan de ziekte. Ondanks de sterke vooruitgang in de zorg overlijdt ruim de helft van de patiënten vóór het dertigste levensjaar. De Stichting Cystic Fibrosis in Beweging (CFiB) is opgericht om de bekendheid van de ziekte Cystic Fibrosis onder het Nederlandse publiek te vergroten en financiële middelen te verwerven voor medisch wetenschappelijk onderzoek en projecten van de Nederlandse Cystic Fibrosis Stichting (NCFS) ten behoeve van de kwaliteit van leven van patiënten met Cystic Fibrosis. Op deze website vindt U meer informatie over Cystic Fibrosis, de stichting CFiB en de NCFS, over de projecten die met de opbrengsten van de CFiB gefinancierd zullen kunnen gaan worden. CFiB

12. Pennsylvania Cystic Fibrosis Inc. Dedicated to education and information for those interested in CF. http://www.pacfi.org/

Home of the million dollar bear campaign Flying And Dreaming With........Burke P Bear "Million Dollar Bear" Campaign and "Burke's Tour" FAQ What Is Cystic Fibrosis Wonderful Legacy ... Click here to order Burke P. Bear Burke P. Bear was proclaimed "The Pennsylvania Ambassador for Love, Peace, Having Fun, and Curing Cystic Fibrosis" in a unanimous 199-0 vote by the PA House of Representatives in June, 1999. "Burke's Tour" is taking the traveling ambassador through each state and several world countries. So far, he has visited 31 states in addition to England, the United Arab Emirates, Thailand, Russia, Greece, Nepal, Uruguay, Chile, Argentina, Brazil, and Israel where he spreads his ambassador's message: To love each other, to live peacefully, to have fun, and to help cure CF.

13. Cystic Fibrosis Nurses: The International Specialist Group Includes objectives, constitution, officers, events, meeting archives, and discussion forum. http://www.cfnurses.net/

UK CF Nurse Specialist Group's Consensus Standards for the Nursing management of CF T H E I N T E R N A T I O N A L N U R S E S P E C I A L I S T G R O U P - C Y S T I C F I B R O S I S c/o Susan Madge, Department of Cystic Fibrosis, Royal Brompton Hospital, Sydney Street, London SW3 6NP, UK. Tel +44 207 352 8121 ext 4053, bleep 6013 email: S.Madge@rbh.nthames.nhs.uk Comments, suggestions, ideas ? Send us an email Last update: November 30, 2002 Webmaster: Filippo Festini, RN sw="none";sd="none";ref=""+escape(document.referrer);

14. Cystic Fibrosis In The Ukraine http://hoshi.cic.sfu.ca/abstracts/posters/Poster80.txt

15. Cystic Fibrosis Foundation ... Adding Tomorrows Every Day What Is CF cystic fibrosis is a genetic disease affecting approximately30,000 children and adults in the United States. CF causes http://www.cff.org/about_cf/

What is CF Progress in CF Research Gene Therapy and CF Patient and Family Education ... Special Event Prizes What Is CF Cystic fibrosis is a genetic disease affecting approximately 30,000 children and adults in the United States. CF causes the body to produce an abnormally thick, sticky mucus, due to the faulty transport of sodium and chloride (salt) within cells lining organs such as the lungs and pancreas, to their outer surfaces. The thick CF mucus also obstructs the pancreas, preventing enzymes from reaching the intestines to help break down and digest food. Specialized treatments are available to address these problems at CF Foundation-supported care centers across the country. CF has a variety of symptoms. The most common are: very salty-tasting skin; persistent coughing, wheezing or pneumonia; excessive appetite but poor weight gain; and bulky stools. The sweat test is the standard diagnostic test for cystic fibrosis. This simple and painless test measures the amount of salt in the sweat. A high salt level indicates that a person has CF. The treatment of CF depends upon the stage of the disease and which organs are involved. One means of treatment, chest physical therapy, requires vigorous percussion (by using cupped hands) on the back and chest to dislodge the thick mucus from the lungs. Antibiotics are also used to treat lung infections and are administered intravenously, via pills, and/or medicated vapors which are inhaled to open up clogged airways. When CF affects the digestive system, the body does not absorb enough nutrients. Therefore, people with CF may need to eat an enriched diet and take both replacement vitamins and enzymes.

16. Cystic Fibrosis Learn more about this condition, the causes, and what it is like to live with CF. http://www.kidshealth.org/kid/health_problems/heart/cystic_fibrosis.html

KidsHealth Kids Kids' Health Problems Every day when she wakes up, Lisa's parents thump her back and chest for at least 20 minutes to help clear her lungs of the thick mucus that sometimes makes it difficult for her to breathe. At school, Lisa coughs a lot. She keeps a box of tissues on her desk - just in case - that she uses to cough up mucus. In gym class, she participates in sports but often gets tired easily. At lunchtime, Lisa takes pills to help her digest her food and get all the vitamins she needs. It's especially important that she keep up her strength so she can deal with a condition she's known all her life - cystic fibrosis (say: sis -tick fi- bro -ses). What Is CF? Cystic fibrosis (CF) is an illness that affects more than 30,000 children and young adults in the United States. It can be mild or severe, depending on the person. Cystic fibrosis affects the lungs , plugging them with mucus that often makes breathing difficult. If the mucus isn't cleared out of the lungs, it will trap bacteria and other germs , sometimes leading to serious infections.

17. STICHTING LEVEN MET CYSTIC FIBROSIS Een Site Voor Mensen Met CF - Taaislijmziekt Stelt zich tot doel het verhogen van de kwaliteit van leven van pati«nten met cystic fibrosis en het vergroten van de naamsbekendheid van cystic fibrosis http://www.levenmetcf.nl/

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18. Cystic Fibrosis Trust: Fundraising - Press Office Press Office Welcome to the media relations site for the cystic fibrosisTrust. This section gives you the latest news from the http://www.cftrust.org.uk/fundraising/press_office.htm

Press Office Welcome to the media relations site for the Cystic Fibrosis Trust. This section gives you the latest news from the Cystic Fibrosis Trust and the world of CF. Here you can also find up-to-date press information about the Trust and who to contact if you have a media enquiry. Last updated 13.03.03 CF Week "Inside Outside" Poster - AVAILABLE NOW! Please contact Hazel Briner on 020 8464 7211 to place your order. CF Week 2003 5-13th April - advance warning - Cinema Advert to be shown across the UK. For further details click here Employment opportunities at the BBC The BBC are so committed to reflecting the audience they serve, they provide the equipment or support you may need to do your job enabling you to contribute your talent where it's needed most. www.bbc.co.uk/working

19. Boomer Esiason Cystic Fibrosis Foundation-Sponsoring Hope To Those Affected By C of the symptoms of CF, causes, treatments, and current research....... http://www.esiason.org/?page=cystic_fibrosis_defined.html

20. -+=CFRI=+- Cystic Fibrosis Research, Inc. http://www.cfri.org/home.htm

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