81. Cochrane Cystic Fibrosis & Genetic Disorders Review GroupMain Page cystic fibrosis Genetic Disorders Group. cystic fibrosis . Phenylketonuria. Sickle Cell . Haemophilia . Other Genetic Disorders. http://www.liv.ac.uk/cfgd/

Cystic Fibrosis . Phenylketonuria . Sickle Cell . Haemophilia . Other Genetic Disorders About the Review Group About the Cochrane Collaboration Reviewer Resources Links ... Contact the Group Feedback: cfgd@liv.ac.uk An international network of health care professionals, researchers and consumers preparing, maintaining, and disseminating systematic reviews of randomised control trials in the treatment of cystic fibrosis and other genetic disorders. Welcome : Click on the Cochrane Collaboration logo to enter our site Last reviewed 17 June 2002.

82. Cystic Fibrosis Western Australia Includes a calendar of events, information for people with CF who travel to Australia from other countries (what their healthcare entitlements are), pointers for teachers of children with CF, and a list of services and support. http://www.cysticfibrosiswa.org

83. Cystic Fibrosis Learn more about this condition, the causes, and what it is like to live with CF.Category Kids and Teens Health cystic fibrosis......cystic fibrosis affects the lungs and makes it hard to breathe and easyto cough. Learn more about this written especially for kids! http://kidshealth.org/kid/health_problems/heart/cystic_fibrosis.html

KidsHealth Kids Kids' Health Problems Every day when she wakes up, Lisa's parents thump her back and chest for at least 20 minutes to help clear her lungs of the thick mucus that sometimes makes it difficult for her to breathe. At school, Lisa coughs a lot. She keeps a box of tissues on her desk - just in case - that she uses to cough up mucus. In gym class, she participates in sports but often gets tired easily. At lunchtime, Lisa takes pills to help her digest her food and get all the vitamins she needs. It's especially important that she keep up her strength so she can deal with a condition she's known all her life - cystic fibrosis (say: sis -tick fi- bro -ses). What Is CF? Cystic fibrosis (CF) is an illness that affects more than 30,000 children and young adults in the United States. It can be mild or severe, depending on the person. Cystic fibrosis affects the lungs , plugging them with mucus that often makes breathing difficult. If the mucus isn't cleared out of the lungs, it will trap bacteria and other germs , sometimes leading to serious infections.

84. Cystic Fibrosis cystic fibrosis (CF) is a lifeshortening inherited disease of young people,currently affecting more than 30000 American children and young adults. http://kidshealth.org/parent/medical/lungs/cf.html

KidsHealth Parents Medical Problems Cystic fibrosis (CF) is the number-one life-shortening inherited disease of young people, currently affecting more than 30,000 American children and young adults. It is a genetic disorder that particularly affects the lungs and digestive system, and it makes a child more vulnerable to repeated lung infections. Now, thanks to high-tech medical advances in drug therapy and genetics, children born with CF can look forward to longer and more comfortable lives. In the last 10 years, research into all aspects of CF has helped us to understand the illness better and to develop new therapies. In the future, ongoing research may help us find a cure. Cystic fibrosis makes children sick by disrupting the normal function of epithelial cells - cells that make up the sweat glands in the skin and that also line passageways inside the lungs, liver, pancreas, and digestive and reproductive systems. In CF, the inherited CF gene directs the body's epithelial cells to produce a defective form of a protein called CFTR. When the CFTR protein is defective, epithelial cells can't regulate the way chloride (part of the salt called "sodium chloride") passes across cell membranes. This disrupts the essential balance of salt and water that is needed to maintain a normal thin coating of fluid and mucus inside the lungs, pancreas, and passageways in other organs. The mucus becomes thick, sticky, and hard to move.

85. Boogerwoods Benefits cystic fibrosis. http://www.boogerwoods.com

26 th Anniversary BOOGER BUSTIN IS A TUFF JOB DATES Oct. 25 - 26 - 30 - 31 This Site Has Won The The Internet's Premiere Halloween Publication Comments From Past Visitors THE ULTIMATE HALLOWEEN ENTERTAINMENT IN NORTH CAROLINA..............................THE ULTIMATE HALLOWEEN ENTERTAINMENT IN NORTH CAROLINA

86. Ask NOAH About: Cystic Fibrosis Español. Ask NOAH About cystic fibrosis. What is cystic fibrosis? Careand Treatment. Trials. Living with cystic fibrosis, Information Resources. http://www.noah-health.org/english/illness/respiratory/cystic.html

Ask NOAH About: Cystic Fibrosis What is Cystic Fibrosis? Care and Treatment The Basics Diagnosis and Genetic Testing Information for Parents, Teachers, and Children ... To Genetic Diseases Main Page What is Cystic Fibrosis? The Basics About CF - Canadian Cystic Fibrosis Foundation (also in French Check Your Cystic Fibrosis I.Q. - American Association of Respiratory Care Cystic Fibrosis - American Association of Respiratory Care Cystic Fibrosis - New South Wales Genetics Program, Australia ... Cystic Fibrosis - MEDLINEplus (also in Spanish ) (Interactive Flash Presentation) Cystic Fibrosis - Methodist Health Care System, Houston TX (also in Spanish Cystic Fibrosis - Your Genes, Your Health (Interactive Flash Presentation) Facts About Cystic Fibrosis - National Heart Blood Lung Institute Facts About Cystic Fibrosis (PDF) - National Heart Blood Lung Institute PDF File of 6 Page) What is CF? - Cystic Fibrosis Foundation You Were Asking - Canadian Cystic Fibrosis Foundation PDF File of 6 Page) (also in French Diagnosis and Genetic Testing Carrier Testing for Cystic Fibrosis - Canadian Cystic Fibrosis Foundation PDF File of 12 Page) (also in French Causes - Cystic Fibrosis Trust The CF Gene - Cystic Fibrosis Trust Cystic Fibrosis (CF) Carrier Screening - March of Dimes ... PDF File of 2 Page) Cystic Fibrosis: Confidentiality and Genetic Information - Canadian Cystic Fibrosis Foundation PDF File of 7 Page) (also in French Cystic Fibrosis Testing: The Decision is Yours - American College of Obstetricians and Gynecologists Cystic Fibrosis Testing: What Happens If Both My Partner and I Are Carriers? - American College of Obstetricians and Gynecologists

87. Connecticut Children's Medical Center: Pulmonary Medicine Provides services for children of all ages with asthma, apparent life threatening events, and bronchopulmonary dysplasia, as well as children and adults with cystic fibrosis. http://www.ccmckids.org/departments/pulm.htm

Staff Office Locations The Pulmonary Division provides services for children of all ages with asthma , apparent life threatening events, and bronchopulmonary dysplasia, (the Chronic Infant Lung Disease (ChILD) Program). The Division also provides care for children and adults with cystic fibrosis as well as for children with all types of acute and chronic respiratory disease. Fiberoptic bronchoscopy, pulmonary function testing for infants and older children including exercise testing and bronchial challenge testing can be performed by members of the division. Sweat tests may be ordered by contacting the Division. Office Locations Location: 2B Telephone: 860.545.9440 After hours: 860.545.9440 Pulmonary Function Lab: 860.545.9447 Fax: 860.545.9445 Home About Us Children Departments ... Website Information

88. Cystic Fibrosis - Doctor's Guide To The Internet The latest medical news and information for patients or friends/parents of patientsdiagnosed with cystic fibrosis and cystic fibrosisrelated disorders. http://www.pslgroup.com/CF.HTM

89. If You Ask James About Cystic Fibrosis If You Ask James About cystic fibrosis. ASK JAMES MENU). http://azcowboy88.tripod.com/

If You Ask James About Cystic Fibrosis preload("twe44152A","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/whatiscf.jpg"); preload("twe44152B","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/whatiscf.jpg"); preload("twe44153A","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/cflinks.jpg"); preload("twe44153B","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/cflinks.jpg"); preload("twe44154A","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/kidsparents.jpg"); preload("twe44154B","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/kidsparents.jpg"); preload("twe44155A","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/treatment.jpg"); preload("twe44155B","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/treatment.jpg"); ... preload("twe441515A","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/feature.jpg"); preload("twe441515B","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/feature.jpg"); Cystic Fibrosis,CF links,diagnosis of cystic fibrosis,CF treatments,CF medications,cystic fibrosis foundations,cystic fibrosis awareness,complications of CF,symptoms of cystic fibrosis,causes of cystic fibrosis,Pseudomonas,Burkholderia cepacia,Pseudomonas aeruginosa,respiratory treatment,chest physiotherapy,cpt,digestive enzymes,mal absorption,chronic lung infections,antibiotics,James,James Binegar

90. Connecticut Children's Medical Center: Otolaryngology Special programs include a pediatric cochlear implant program, endoscopic sinus surgery for children with cystic fibrosis, and a program for management of the pediatric artificial airway. http://www.ccmckids.org/departments/otol.htm

Staff Office Locations Links The Department of Otolaryngology maintains a full service pediatric program. In addition, special programs include a pediatric cochlear implant program, endoscopic sinus surgery for children with cystic fibrosis, and a program for management of the pediatric artificial airway. The service coordinates its activities as part of the craniofacial team to serve these children with special needs. OFFICE LOCATIONS CCMC: 2K Telephone: 860.545.9650 Fax: 860.545.9214 Satellite Offices: All appointments are made by calling the Hartford office, 860.545.9650. Glastonbury Hartford Hospital Healthcare Center, Suite 204 704 Hebron Avenue I-84 East or West Take Exit 55 (Rte 2E) Follow Rte. 2E to Exit 8 (CT-94/Hebron Ave) At end of ramp, turn Left onto Hebron Ave At 3rd light, turn right onto Oakwood Drive The Hartford Hospital Healthcare Center Building is on your immediate left- Turn Left into parking lot From Eastern CT Take Rte 2W towards Hartford Follow Rte. 2W to Exit 8 (CT-94/Hebron Ave)

91. If You Ask James About Cystic Fibrosis cystic fibrosis, CF links, cystic fibrosis information including personal experiencewith CF, treatments, medications, complications, coping, support groups http://azcowboy88.tripod.com/askjames/

If You Ask James About Cystic Fibrosis preload("twe44152A","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/whatiscf.jpg"); preload("twe44152B","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/whatiscf.jpg"); preload("twe44153A","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/cflinks.jpg"); preload("twe44153B","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/cflinks.jpg"); preload("twe44154A","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/kidsparents.jpg"); preload("twe44154B","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/kidsparents.jpg"); preload("twe44155A","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/treatment.jpg"); preload("twe44155B","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/treatment.jpg"); ... preload("twe441515A","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/feature.jpg"); preload("twe441515B","http://azcowboy88.tripod.com//sitebuildercontent/sitebuilderpictures/feature.jpg"); Cystic Fibrosis,CF links,diagnosis of cystic fibrosis,CF treatments,CF medications,cystic fibrosis foundations,cystic fibrosis awareness,complications of CF,symptoms of cystic fibrosis,causes of cystic fibrosis,Pseudomonas,Burkholderia cepacia,Pseudomonas aeruginosa,respiratory treatment,chest physiotherapy,cpt,digestive enzymes,mal absorption,chronic lung infections,antibiotics,James,James Binegar

92. Research Interests Studies of cystic fibrosis gene therapy. From the University of Edinburgh in Scotland. http://www.ed.ac.uk/~pthorpe/research.htm

Research Interests Gene Correction of Cystic Fibrosis mutations (1999-) Cystic Fibrosis Gene Therapy Assays (1997-1999) Type I Restriction and Modification Systems (1990-1996) Cystic Fibrosis and Gene Therapy Cystic Fibrosis (CF) and our Gene Therapy research (including lab. Publications) are briefly summarised as part of the Medical Genetics Cystic Fibrosis group within the Medical Genetics Section . Note this site is still under development. Correction of Cystic Fibrosis Mutations 1999- Click here - our current research is detailed on a separate page Cystic Fibrosis Gene Therapy Assays 1997-1999 At the MRC Human Genetics Unit Edinburgh. My research was involved with developing and utilising a variety of assays to study the efficacy of gene delivery and expression of our Gene Therapy reagents. We used quantitative PCR in situ hybridisation to study gene delivery to the lungs; and epitope tagged versions of CFTR to study protein synthesis and localisation. The aim is to have available an array of assays which enable a thorough analysis of the efficiency of gene therapy reagents in all experimental systems, including potential clinical trials. References;

93. CYSTIC FIBROSIS FOR KIDS This site is for children with cystic fibrosis designed by a man from the Netherlands with CF.Category Health Conditions and Diseases Personal Pages......This site is made by acenl webdesign the netherlands for children with cysticfibrosis. - - - Welcome to cystic fibrosis for KIDS !!! ). http://members.tripod.com/~jtatton/

Welcome to Cystic Fibrosis for KIDS !!! :) I am your host my name is William. Just like you I have Cystic Fibrosis. I know that much of Cystic Fibrosis that all the people I know call me Dr.Bob . On the next pages I'm going to tell you everything I know about Cystic Fibrosis. The good thing is , I'm not going to give you shots, IV's or anything so come along and follow me. Dr.Bob has many, many friends on the internet, and 3 nurses that help me with everything I don't know (even a doctor don't know everything). I'm William and I live in The Netherlands. That country lies between Germany and Belgium, look on a world map for that . I'm a boy of 38 years old and have 1 brother with Cystic Fibrosis and 1 sister without it. Sometimes I really wish I didn't have Cystic Fibrosis and I bet you feel the same. Still I know it will never go away, no matter how hard I wish. WELCOME TO YOUR OWN WEBSITE. Site updated 19-12-2002 IF YOU USE THIS WEB SITE, YOU AGREE TO GIVE UP ANY LEGAL RIGHT YOU MIGHT HAVE TO SUE THE OWNER AND OTHER USERS FOR PERSONAL DAMAGES THAT MAY OCCUR THROUGH ITS USE. THE OWNER PROVIDES THIS WEB SITE AS A FREE SERVICE, AND ASSUMES NO LIABILITY FROM ITS USE."

94. Cystic Fibrosis - Information And Support Resources Page with basic information on cystic fibrosis symptoms, incidence in people of Jewish descent (Ashkenazi Jews), diagnosis, treatment, and screening. http://www.mazornet.com/genetics/cystic_fibrosis.asp

Jewish Genetic Diseases A Mazornet Guide VISIT MazorNet's other Jewish Guides The MazorNet-Jewish Celebrations Kosher Restaurant Guide The MazorNet- Jewish Celebrations Vendor Directory ( ... Photographers, Kosher Caterers, Bridal Gowns, and Much More) Important Information Home Page Genetic Counseling and Screening Genetic Screening Laboratories - A Directory A Brief Key to Basic Genetic ... s Select Disorder Bloom's Syndrome Breast and Ovarian Cancers Breast Cancers - Prevention and Resources Canavan Disease ... Ulcerative Colitis Recommended Reeading Genetic Diversity Among Jews - Diseases and Markers at the DNA Level Provides an authoritative, up-to-date account of the impact of molecular genetics on our understanding of genetic diseases prevalent among Jews. Jewish Genetic Disorders : A Layman's Guide Guide to genetic disorders that tend to affect the Jewish population more than the non-Jewish, including a short history of the Jews and basic facts concerning genetics and genetic disorders. Interactive Jewish Genetic Diseases Boards Cystic Fibrosis Symptoms Incidence in People of Jewish Descent Diagnosis Treatment ... Resources and More Cystic Fibrosis is an inherited disorder that causes problems with breathing and digestion. The majority of people stricken with Cystic Fibrosis are diagnosed in childhood.

95. Hope Chest Publishing -- Children's Books To Last A Lifetime In Your Heart And I Offers sample illustrations and excerpts from the spiral bound fantasy story, part of whose sales proceeds benefit cystic fibrosis Foundation. http://www.hopechestpublishing.com/

Children's books to last a lifetime in your heart and in your hands Hope Chest Publishing proudly presents RAINY DAY MAGIC Written by Jan Finks Illustrated by Michael S. Mayes This book is a wonderful story that allows young children to step inside RAINY DAY MAGIC and discover their imaginations, hidden treasures, secret rooms, and great adventures. The book is a beautifully illustrated spiral-bound book printed on very durable glossy card stock. Your children will enjoy passing this book onto their children. Adam is the grandson of the book author and the inspiration for the tales within this book and many more to come. A percentage of the proceeds from this book will be donated to the Cystic Fibrosis Foundation in Adam's name. Be sure to get your copy today in time for the holiday season! Adam About the author More on this book Order Online Contact Us Hosted and Designed by AccessZone Design

96. Informationdocuments From the European Thematic Network for cystic fibrosis. In depth information in PDF. http://www.med.kuleuven.ac.be/cme/cf/Informationdocuments.htm

European Thematic Network for Cystic Fibrosis Information documents A manual for Cystic Fibrosis patients and their families A manual for the CF patients and their families has been designed to provide cystic fibrosis-patients and their families a better understanding of the disease. This leaflet is part of a European initiative undertaken by the European Concerted Action for Cystic Fibrosis. The text is based on the manual of the World Health Organisation (WHO) and the International Cystic Fibrosis (Mucoviscidosis) Association (ICF(M)A). The manual includes the following topics: what is cystic fibrosis what happens in the lungs what happens in the pancreas when to suspect cystic fibrosis how is cystic fibrosis inherited from the parents treatment of cystic fibrosis hospital relatives and friends you are not alone These leaflets are presently available in sixteen languages: English French German Spanish ... Polish and Macedonian version We would like to thank the translators (translation bureau of AstraZeneca Diagnostics, Milan Macek Jr., Katarina Stepankova, Adriana Zigova, Antonija Redovnikovic, Branko Simat, Jadranka Sertic, Zita Krumina, Dragica Radojkovic, Tatyana K. Kascheeva, Ludmila A. Livshits, Natalia V. Gryschenko, Krisztina Nemeth, Gyorgy Fekete, V. Kucinskas, A. Utkus, J. Kasnauskiene, K. Konciute, Michal Witt, Lucyna Majka, Svetlana Koceva) for all their efforts and cooperation, Orchid, Innogenetics and Nanogen for printing these manuals!

97. Richard Collyer A sponsored cycle ride, by three Norfolk police officers from Lands End to John o'Groats, in June 2000 to raise money for the cystic fibrosis Trust. http://www.collyer.clara.net/

This is me, Richard Collyer (in the yellow), Nick Gatward (in the red) and Paul Claxton. Between the 7 th and 16 th of June 2000, we cycled from Land's End to John O'Groats to raise over £5000 for the Cystic Fibrosis Trust (reg charity no 281287) Also in the picture is Paul's 7 year old daughter Melissa, who has Cystic Fibrosis. These pages are an account of our planning, preparation and our cycling endeavours. [About Us] [Diary] [Route] [The Cystic Fibrosis Trust] ... homepage

98. Cochrane Cystic Fibrosis & Genetic Disorders Review Group At The Dept Of Child H Cochrane cystic fibrosis Genetic Disorders Review Group. cystic fibrosis. Phenylketonuria . Sickle Cell . Haemophilia . Other Genetic Disorders. http://web.bham.ac.uk/walterss/CFcochrane1.htm

Genetic Disorders Review Group Cystic Fibrosis . Phenylketonuria . Sickle Cell . Haemophilia . Other Genetic Disorders Enquiries CFGD@liv.ac.uk Welcome Our webpages have been relocated and updated at a new location. You should be automatically diverted to our new webpages in a few seconds. I this does not happen, please click on the link below. http://www.liv.ac.uk/CFGD Please update your bookmarks/favorites Last reviewed 01/10/2001.

99. Andy Nicolls Racing A small group of people, all batty about bikes for one reason or another, just happened to be sitting around (well, drunkenly slouching) in their local pub, and decided to comepete to raise money for cystic fibrosis. http://www.anracing.co.uk/

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100. Cysitic Fibrosis - Pulmonology Information on cystic fibrosis.Category Health Conditions and Diseases cystic fibrosis......cystic fibrosis (CF) is the most common fatal, inherited disease inthe US. CF causes the body to produce abnormally thick and sticky http://www.pulmonologychannel.com/cf/

Home Search SiteMap Ask the Dr. ... Medical Store advertisement CYSTIC FIBROSIS Overview Symptoms Diagnosis Treatment-General ... Additional Info. CONDITIONS ARDS Asthma Bronchitis Chronic Cough ... Solitary Pulmonary Nodule Tuberculosis RESOURCES Anatomy Clinical Trials Links Videos ABOUT US Healthcommunities.com Pressroom Testimonials Cystic fibrosis (CF) is the most common fatal, inherited disease in the United States (see Statistics ). CF causes the body to produce abnormally thick and sticky mucus in several different parts of the body, most prominently in the lungs and other parts of the respiratory system. It also affects the pancreas, leading to serious digestive problems. CF alters the mucus secretions of the body’s epithelial cells. Epithelial cells make up the outside layer of tissue that lines every open surface of the body, inside and out, including the various tunnels and cavities in the lungs, urinary tract, liver, and reproductive tract. In patients with CF, the mucus that the epithelial cells secrete is much thicker and stickier than normal. It clogs the airways of the lungs, blocking the flow of air and making the tissue vulnerable to continual lung infections. It blocks the flow of pancreatic juices in the pancreas, impeding digestion and the absorption of fats and fat-soluble vitamins, leading to nutrition deficiencies and intestinal complications. CF is a genetic disease resulting from the inheritance of a defective autosomal recessive gene (see Genetics of Cystic Fibrosis ). A recessive gene is one that is expressed only when both copies of the gene are present, so a person with CF must have inherited the gene that causes CF from both parents. A person who has only one copy of the gene is known as a "CF carrier."

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