81. MedWebPlus Subject Hemophilia A free service to help you find health sciences information quickly and easily. hemophilia Web Sites A, , GO, AHF the hemophilia disease management company. http://www.medwebplus.com/subject/Hemophilia

82. Hematology/Oncology - Hemophilia Hematology/Oncology. hemophilia. hemophilia A (Factor VIII deficiency)and hemophilia B (Factor IX deficiency) are bleeding disorders http://www.mc.vanderbilt.edu/peds/pidl/hemeonc/hemophil.htm

PIDL Home/ Contents Development Nutrition Acute Illness ... Psychosocial Hematology/Oncology HEMOPHILIA Hemophilia A (Factor VIII deficiency) and hemophilia B (Factor IX deficiency) are bleeding disorders that are inherited as x- linked recessive traits. Thus, both affect males almost exclusively. The two disorders are clinically indistinguishable but can be easily differentiated by Factor VIII and Factor IX activity assays. In hemophilia A, the Factor VIII procoagulant moiety (Factor VIII:C) is deficient or abnormal, but other components of the Factor VIII/von Willebrand factor system (Von Willebrand's Factor antigen and Ristocetin Cofactor activity) are normal. In general, the severity of bleeding manifestations correlates well with the Factor VIII:C value. Hemophilia B (Christmas disease) is characterized by subnormal Factor IX activity, which may reflect a quantitative or qualitative abnormality in the Factor IX molecule. Both hemophilia A and hemophilia B are heterogeneous conditions with variable degrees of clinical expression. Hemophilia A is far more common, occurring in 1 in 10,000 males in the United States. In contrast, the incidence of hemophilia B is 0.25 in 10,000 males. More than 60% of patients will have a positive family history. Because of the high spontaneous mutation rate for this disease, as many as 1/3 of hemophiliacs have no significant family history.

83. MEDLINEplus: Hemophilia All Topics. hemophilia. Contents of this Children Teenagers. Search MEDLINEfor recent research articles on • hemophilia. You may also http://www.nlm.nih.gov/medlineplus/hemophilia.html

Skip navigation Other health topics: A B C D ... List of All Topics Hemophilia Contents of this page: General/Overviews Coping Pictures/Diagrams Research ... Teenagers Search MEDLINE for recent research articles on Hemophilia You may also be interested in these MEDLINEplus related pages: Bleeding Disorders Blood/Lymphatic System Genetics/Birth Defects General/Overviews Frequently Asked Questions: Hemophilia (World Federation of Hemophilia) Also available in: Spanish Hemophilia (Mayo Foundation for Medical Education and Research) Hemophilia: Facts for Families (World Federation of Hemophilia) Clinical Trials ClinicalTrials.gov: Hemophilia A (National Institutes of Health) Coping Information for Teachers and Childcare Providers (National Hemophilia Foundation) Tips for Travellers (World Federation of Hemophilia) Also available in: Spanish Pictures/Diagrams Hemophilia in Pictures (World Federation of Hemophilia) Also available in: Spanish Research Gene Therapy (National Hemophilia Foundation) Specific Conditions/Aspects Bleeding Disorders: Financial and Insurance Issues (National Hemophilia Foundation) Factor I Deficiency (Afibrinogenemia) (National Hemophilia Foundation) Factor II Deficiency (Prothrombin) (National Hemophilia Foundation) Factor V Deficiency (Mayo Foundation for Medical Education and Research) Factor VII Deficiency (Proconvertin or Stable Factor) (National Hemophilia Foundation) Hemophilia A (Factor VIII Deficiency) (National Hemophilia Foundation) Hemophilia B (Factor IX Deficiency) (National Hemophilia Foundation)

84. MEDLINEplus Medical Encyclopedia: Hemophilia hemophilia. Contents of this page This disease affects mostly males. Diseases inthis category include hemophilia A; hemophilia B; von Willebrand's disease. http://www.nlm.nih.gov/medlineplus/ency/article/000537.htm

Skip navigation Medical Encyclopedia Other encyclopedia topics: A-Ag Ah-Ap Aq-Az B-Bk ... Z Hemophilia Contents of this page: Illustrations Definition Illustrations Blood clots Definition Return to top A sex-linked hereditary bleeding disorder in which it takes a long time for the blood to clot and abnormal bleeding occurs. This disease affects mostly males. Diseases in this category include: hemophilia A hemophilia B von Willebrand's disease Update Date: 10/4/2001 Updated by: Victoria Kennedy, RN, A.D.A.M. editorial. Health Topics Drug Information Encyclopedia Dictionary ... National Institutes of Health Page last updated: 10 January 2003

85. Hemophilia Treatment Center Harold R. Roberts. Comprehensive hemophilia Diagnostic and TreatmentCenter. Center for Thrombosis and Hemostasis School of Medicine http://www.med.unc.edu/wrkunits/3ctrpgm/thromb/comprehe/

Harold R. Roberts Comprehensive Hemophilia Diagnostic and Treatment Center Center for Thrombosis and Hemostasis School of Medicine 433 Burnett-Womack Building CB #7015 Chapel Hill, NC 27599-7015 Director: Gilbert C. White II, M.D. (919)966-4736; fax: (919)966-8224 email contact: unchtc@med.unc.edu HEMOPHILIA TREATMENT CENTER STAFF This includes a list of all staff members who are associated with treatment and counseling of patients with hemophilia or other bleeding disorders. PHYSICIAN RESOURCES Includes information on the diagnosis, treatment and management of hemophilia A, hemophilia B, and von Willebrand's disease. PATIENT RESOURCES Includes information on "What is hemophilia / von Willebrand's disease?", genetics of hemophilia, home therapy, research studies using new factor products, and HIV/AIDS Clinical Trials. CENTER NEWS OTHER SITES OF INTEREST: Coalition for Hemophilia B Haemophilia Hemophilia and von Willebrand's Disease: Diagnosis, Comprehensive Care, and Assessment. HAMSTeRS: The Hemophilia A Mutation, Structure, Test and Resource Site ... Haemophilia Forum A site for physicians and other health care professionals Hemophilia Home Page Hemophilia of Georgia, Inc. Home Page

86. Gene Therapy For Hemophilia The International Symposium on Gene Therapy for hemophilia September 4 6, 1997, University of North Carolina at Chapel Hill, Chapel Hill, NC. http://www.med.unc.edu/thromb/gene.htm

The International Symposium on Gene Therapy for Hemophilia September 4 - 6, 1997, University of North Carolina at Chapel Hill, Chapel Hill, NC Muscle positive for vector transduction, courtesy of R. J. Samulski and Olivier Danos Presented by the UNC Hemophilia Treatment Center, and the Hemophilia Treatment Centers of Region IV North, the UNC Center for Thrombosis and Hemostasis and the UNC Human Gene Therapy Center. Sponsored by the UNC Office of Continuing Medical Education and Alumni Affairs of the UNC School of Medicine. Organizing Committee: Kenneth M. Brinkhous, M.D. Jeffrey A. Frelinger, Ph.D. Harold R. Roberts, M.D. Richard Jude Samulski, Ph.D. Christopher E. Walsh, M.D., Ph.D. Gilbert C. White II, M.D. David A. Wilcox, Ph.D. Summary, Meeting Agenda and Speakers' Abstracts Poster Abstracts We wish to thank the following companies and organizations for their support and for their contributions of educational grants. Alpha Therapeutic Corporation American Heart Association, Council on Thrombosis American Red Cross Bayer Corporation, Pharmaceutical Division

87. Hemophilia hemophilia resources, support groups, clinics with genetic counselors and geneticists.Image that's a link to Genetics Education Center Support Page hemophilia. http://www.kumc.edu/gec/support/hemophil.html

Hemophilia National Hemophilia Foundation 110 Greene St, Room 303 New York, NY 10012 Phone: (800) 424-2634 or (212) 219-8180 Contact: Cathy Crosby Fax: (212) 966-9247 Web site: www.hemophilia.org World Federation of Hemophilia 1310 Greene Avenue, Suite 500 Montreal, Canada H3Z 2B2 Phone: (514) 933-7944 Fax: (514) 933-8916 E-mail: wfh@wfh.org Web Site: www.wfh.org/ World Federation Links International Resources: Association Française des Hémophiles , France Association for Persons with Hemophilia (Russia) Belgian Haemophilia Society Canadian Hemophilia Society Danmarks Bløderforening , Denmark The German Haemophilia Association The Haemophilia Society , United Kingdom Haemophilia Foundation Australia Icelandic Haemophilia Society Italian Hemophilia Foundation Federazione delle Associazioni Emofilici - ONLUS Netherlands Hemophilia Society Norwegian Haemophilia Society Spanish Hemophilia Federation / Federación Española de Hemofilia South African Haemophilia Foundation ... Swiss Hemophilia Society Other information Hemophilia Page (Bleeding Disorders, Haemophilia)

88. How To Deal With Hemophilia A person with hemophilia, though, has more to worry about than justpassing out at the sight of his own blood. What Is hemophilia? http://kidshealth.org/kid/health_problems/blood/hemophilia.html

KidsHealth Kids Kids' Health Problems Blood Does the sight of blood bother you? Some people faint at the sight of blood especially when it's their own. A person with hemophilia, though, has more to worry about than just passing out at the sight of his own blood. What Is Hemophilia? Hemophilia (say: heem-a- fi -lee-ah) is a genetic disorder in which a person's blood does not clot properly. "Hemo" means blood and "philia" means a tendency toward. A person who has hemophilia has a tendency to bleed excessively. Printer -friendly version Email this article to a friend Send email to us Jump to another section of this article How to Deal With Hemophilia A Bit About Blood Why Do Kids Get Hemophilia? How Do Kids Learn They Have Hemophilia? and What Do Doctors Do? ... What Life's Like for Kids With Hemophilia Reviewer name and date on last page About Us Contact Us Partners Editorial Policy Note: All information on KidsHealth is for educational purposes only. For specific medical advice, diagnoses, and treatment, consult your doctor.

89. Hemophilia For guys with a rare bleeding disorder called hemophilia, minor cutsand bruises can be a big deal. The good news pretty normal lives. http://kidshealth.org/teen/diseases_conditions/blood/hemophilia.html

KidsHealth Teens Blood Disorders If you ride a skateboard or play a sport, you probably know about bruises and banged-up knees and elbows. Some guys like to show off their scars and bruises or think up stories about how they got them. (It's a lot cooler to say you got a black eye trying to chase down a burglar than to admit that you ran into the bathroom door in the dark.) But for guys with a rare bleeding disorder called hemophilia (pronounced: hee-muh- fee -lee-uh), minor cuts and bruises can be a big deal. The good news is that it's a lot easier to control now than in the past, and most guys with hemophilia live fairly normal lives. The Basics on Blood Blood has four components. Plasma is a fluid that carries blood cells throughout the body. Red blood cells deliver oxygen to every cell in the body; white blood cells fight off viruses and germs ; and platelets help your blood to clot when there is an injury. Without blood, the body can't work properly. When we bleed, it's because a blood vessel is cut or torn. Platelets plug the hole to make the bleeding stop. With the help of calcium, vitamin K, and a protein called fibrinogen (pronounced: feye- brih -noh-jen), the platelets form a mesh-like trap to hold the plug in place and close the wound. This clotting process requires special proteins known as

90. MCG - Comprehensive Hemophilia Treatment Center Specialty section of larger website provides detailed information on hemophilia conditions, describing Category Regional North America United States Georgia Health...... The Medical College of Georgia Comprehensive hemophilia Treatment Center exists toimprove the quality of life for all affected by hemophilia, related bleeding http://www.mcg.edu/centers/Hemo/

91. Northern Alberta Comprehensive Hemophilia Clinic Northern Alberta Comprehensive hemophilia Clinic. Welcome to our HomePage. Members of the Northern Alberta Comprehensive hemophilia Clinic. http://www.ualberta.ca/~britchie/achcn.html

Northern Alberta Comprehensive Hemophilia Clinic Welcome to our Home Page Last update 29 June 1999 The Northern Alberta Comprehensive Hemophilia Clinic has been in existence since 1978. It was formed by the Province of Alberta, under the leadership of the Minister of Health, the Alberta Chapter of the Canadian Hemophilia Society, and their medical consultant, Dr. Garner King. It was charged with the task of providing high quality comprehensive care for people with hemophilia, providing education to families and treaters of hemophilia, and performing research. The clinic has been successful in moving treatment of hemophilia to an outpatient setting, placing control of treatment in the hands of the patients, and providing comprehensive care to people with this disorder. This has resulted in dramatic improvement in efficiencies of care, improved management of hemophilia, improvements in the lifestyle of people with hemophilia, and better relationships between treaters and patients. Comprehensive Clinics are held once a month on the first Monday afternoon of the month in the General Clinics, on the first floor of the Walter McKenzie Center. Comprehensive Clinics are attended by the nurse coordinator, a physiotherapist, a social worker, a representative of the dental clinic, an orthopedic surgeon , and a hematologist. Surveillance clinics are held on intervening Mondays. Members of the Northern Alberta Comprehensive Hemophilia Clinic Wilma McClure RN , Nurse Coordinator Dr. John Akabutu

92. ::ÃÅÌÎÔÈËÈß Â ÐÎÑÑÈÈ:: The summary for this Russian page contains characters that cannot be correctly displayed in this language/character set. http://www.hemophilia.ru/

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93. TKT Patient Information Hemophilia A hemophilia A It is important for your physician,family, and peers to understand hemophilia A. http://www.tktx.com/patient/hemophilia.htm

94. Hemophilia Research Society The hemophilia Research Society of North America is a fully charted, taxexemptresearch organization whose membership consists of nearly 200 physicians http://www.uth.tmc.edu/xorgs/hrs/

95. This Domain Name Is Booked With Www.net4domains.com http://www.hemophiliaindia.org/

96. Welcome To Hemophilia Resources Of America (HRA): Home hemophilia Resources of America (HRA) is a full service provider of hemophilia coagulationproducts and services for adults and children living with hemophilia http://www.hrahemo.com/

HRA is a full service provider of hemophilia coagulation products and services for adults and children living with hemophilia and von Willebrand disease. A word from our clients: "HRA found that my other home care company was filling the prescription at half the dose. Thank God there was no major problem that resulted from this." "Wonderful job. As someone who works with other health related supply companies, it is so wonderful to deal with a company that exclusively deals with hemophilia." "The books have been very appropriate and useful as we educate ourselves and our son about hemophilia." "Helmets, knee pads, LensCard™, and travel case have made it easy for us . Our son has not experienced a joint bleed." "I am so lucky to have HRA as my service provider." View All Quotes Protect your child as he grows by padding the edges and corners of tables. Contact Us Privacy Statement Web Privacy Statement Search ... Site Map

97. Hemophilia Foundation Of Southern California hemophilia Carrier Testing at Orthopaedic Hospital Blood test for girls and womento see whether more, Important Message from Foundation President. http://www.hemosocal.com/

Women's Issues Ricky Ray Program WON embraces all women in the [more] The Ricky Ray Program Office has established ... [more] Hemophilia Carrier Testing at Orthopaedic Hospital Events schedule Blood test for girls and women to see whether... [more] What is the Foundation? Special Events Our community consists of more than 1,200 men, women and children with hemophilia and other bleeding disorders in the Southern California area. Coming from a variety of ethnic, economic and professional backgrounds, our community works together to help one another solve many shared problems. [more] Sunday, June 30, 2002 - 2002 C.D. LeBlanc Polo Match This was a SENSATIONAL day at will Rodgers Park. The 2002 C.D. LeBlanc trophy cup w ent to .... [more] HemoGames Camp 2002 What a great time we had! Shooting hoops [more] Camp Blood Brothers and Sisters was held August 18 - 24, 2002 The Hemophilia Foundation of Southern California invites all children ages 7-14 with hemophilia and other bleeding disorders to join us for our week-long summer camp [more] Board Of Directors Links to Hemophilia related web sites HFSC Board of Directors OFFICERS [more] The Web can be used for multiple purposes. With respect to hemophilia, the Web is typically...

98. Hemophilia A PubMed the literature LocusLink collection of generelated information OMIM catalogof human genes and disorders Information National hemophilia Foundation a http://www.ncbi.nlm.nih.gov/disease/hemoA.html

This Genes and Disease page has been moved to: Please update your bookmarks. If you are not automatically transported to the new page after 15 seconds, click on this link Genome View HEMA on chromosome X Databases PubMed the literature LocusLink collection of gene-related information OMIM catalog of human genes and disorders Information National Hemophilia Foundation a nonprofit organization dedicated to finding cures for inherited bleeding disorders HEMOPHILIA A Treatment of Hemophilia A has progressed rapidly since the middle of the last century when patients were infused with plasma or processed plasma products to replace Factor VIII. HIV contamination of human blood supplies and the consequent HIV infection of most hemophiliacs in the mid-1980s forced the development of alternate Factor VIII sources for replacement therapy, including monoclonal antibody purified Factor VIII and recombinant Factor VIII, both of which are used in replacement therapies today. Development of a gene replacement therapy for Hemophilia A has reached the clinical trial stage, and results so far have been encouraging. Investigators are still evaluating the long-term safety of these therapies, and it is hoped that a genetic cure for hemophilia will be generally available in the future.

99. Hemophilia Library G H. hemophilia. National hemophilia Foundation (NHF) 110 Green Street,Suite 303 New York, NY, USA 10012 (800) 424-2634 Fax (212) 431-0906. http://www.familyvillage.wisc.edu/lib_hemp.htm

Hemophilia Who to Contact Where to Go to Chat with Others Learn More About It Web Sites ... Search AltaVista for "Hemophilia" Who to Contact National Hemophilia Foundation (NHF) 110 Green Street, Suite 303 New York, NY, USA 10012 Fax: (212) 431-0906 Related condition: von Willebrand disease NHF publishes a monthly newsletter, Community Alert , at no charge, and has numerous brochures that are free if you are requesting one copy. They also provide a new parent packet for parents of newly diagnosed children. The Foundation has a library of journals, books and articles relating to bleeding disorders/HIV that are free to members. NHF collects information on physicians and researcher who treat/study the condition and disseminates the research information to its members. They operate a toll-free information line that provides referrals and information. They host a national conference, call for further information. World Federation of Hemophilia (WFH) 1310 Greene Avenue, Suite 500 Montreal, Quebec H3Z 2B2

100. Hemophilia hemophilia, hemophilia is the most common inherited bleeding disorder. Thereare about 20,000 people in the United States who have hemophilia. http://www.ivillagehealth.com/library/onemed/content/0,7064,241012_245627,00.htm

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