1. The Scleroderma Research Foundation Information about the organization, research, mailing list and resources. http://www.srfcure.org/

2. Raynauds & Scleroderma Association Information about the organization, contact information, publications and the latest research. http://www.raynauds.demon.co.uk/

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3. Scleroderma Foundation - Home Page National nonprofit health organization with 14000 members, dedicated to a three-fold mission of support, Category Health Conditions and Diseases scleroderma......The scleroderma Foundation is a national nonprofit health organization dedicatedto a threefold mission of Support, Education, and Research to help fight this http://www.scleroderma.org/

Email Your Questions Get a Free Info Packet Check Our Calendar Read About Our Magazine ... Click here to watch our "Living Well with Scleroderma" video We are grateful for your tax-deductible contribution to help fight scleroderma. Where your dollars go . Membership dues are $25/year. Details Our 2003 National Conference Next Chat: Wednesday, April 9, 9:30 p.m. ET. Chat Host: Carolyn Weller, R.N., National Director of Education and Research Our next Chat will be Wed., April 9, and will be an open chat (no speaker). The start time will be 9:30 p.m. Eastern Time. When it is time, click here to join the Chat or learn more about our twice-monthly online Chats. Read transcripts of earlier Chats.

4. Surviving Scleroderma - Scleroderma Support Click here to tell someone about this site! scleroderma. GOD WILL PROTECT ME http://www.sclerodermasupport.com/

Site Search SD Facts SD Symptoms SD Involvement SD M ... Our Store About Us: Site C opyright Finance Issues The Webmaster ... Contact Info by Sherry Messick Read Site Go To Top Return Home Since 1996 our webmaster , site volunteers and caring participants of our interactive areas have remained dedicated to the mission of bringing scleroderma related medical information, current news and online support to the vast internet public. Scleroderma knows no boundaries, view a list of some of the countries our visitors are from. We hope you find what you need here. If we can be of assistance to you in any way please don't hesitate to contact us. Check It Out! New Discussions in our Message Board Community. New Entries in the Coffeehouse you can also Add Yours Read Stories From Others. Share Yours Scleroderma News Briefs For a complete listing of news articles visit our newsroom pages for: Scleroderma Medical Scleroderma in the Media Upcoming Events The Nonprofit Buzz ... SurvivingSD Website Event Alert: Updated Often Are you planning to attend the scleroderma foundation's conference in June of 2003? Visit our

5. I HAVE SCLERODERMA Collection of stories from people with this condition. Provides links, general information and contact numbers. Angela I am 24 both my parents (44 and 48) have scleroderma and raynauds syndrome. http://www.ihavescleroderma.com/

Our stories: Form to submit story Art Contents Excuse me ... Translation New on our site... Diffuse stories: Angela April I think I found the right cardiologist and a doctor that is VERY good in his field. Eileen So far it hasn't been too painful, but it is progressing fast. CREST/Limited story: Jenn My doctor diagnosed me with an overlapping connective tissue disorder of lupus and scleroderma. Linda I am still not back to work but hopefully one day that will happen. Morphea/linear stories Marie It started with what I thought was a new birthmark around the age of 14. Anonymous I am writing because I want to give parents hope. David It goes without saying that I was growing quite concerned. Tributes: Susan's Mom my mom never let you know how badly she was suffering... Consuelo We miss her something terrible but we know she is at peace. Find others - Make contact with them on the Postits messages.

6. MEDLINEplus: Scleroderma scleroderma Handout on Health scleroderma (National Institute of Arthritis and Musculoskeletal and Skin Diseases) http://www.nlm.nih.gov/medlineplus/scleroderma.html

Skip navigation Other health topics: A B C D ... List of All Topics Scleroderma Contents of this page: From the NIH General/Overviews Diagnosis/Symptoms Research ... Children Search MEDLINE for recent research articles on Scleroderma You may also be interested in these MEDLINEplus related pages: Raynaud's Disease Immune System/AIDS Skin, Hair and Nails From the National Institutes of Health Handout on Health: Scleroderma (National Institute of Arthritis and Musculoskeletal and Skin Diseases) General/Overviews Scleroderma (Arthritis Foundation) Scleroderma (American College of Rheumatology) What Is Scleroderma? (Mayo Foundation for Medical Education and Research) Clinical Trials ClinicalTrials.gov: Scleroderma, Circumscribed (National Institutes of Health) ClinicalTrials.gov: Scleroderma, Systemic (National Institutes of Health) Diagnosis/Symptoms Antinuclear Antibody Test (American Association for Clinical Chemistry) Scleroderma Symptoms (Scleroderma Research Foundation) Research NIH Establishes National Family Registry for Scleroderma (National Institute of Arthritis and Musculoskeletal and Skin Diseases) Specific Conditions/Aspects CREST Syndrome (Mayo Foundation for Medical Education and Research) Localized Scleroderma (Morphea) (Scleroderma Foundation) Understanding Scleroderma: Types (Scleroderma Research Foundation) Directories Find a Rheumatologist (American College of Rheumatology) Organizations American College of Rheumatology Arthritis Foundation Juvenile Scleroderma Network National Institute of Arthritis and Musculoskeletal and Skin Diseases ... Scleroderma Research Foundation Children

7. Scleroderma Who to Contact scleroderma Research Foundation (SRF) PO Box 200 Columbus, New Jersey, USA 08022 Fax (609) 7236700 The scleroderma Research Foundation's mission is provide communication and support for persons and family members whose http://www.familyvillage.wisc.edu/lib_scle.htm

8. Kids Get Scleroderma Too!!!!! Details about this organization who is working to provide educational programs about JSD, and to help Category Health Conditions and Diseases scleroderma......You are visitor Bravenet.com since April 6, 2002! http://www.jsdn.org/

You are visitor # since April 6, 2002!

9. Scleroderma Video A collection of 11 video presentations made by some of the foremost scleroderma experts in the US. http://www.starlight-productions.com/scleroderma_video_series.htm

Home V i deo Titles ... About Scleroderma Scleroderma Video Series 11 Video Volumes available VHS Video Cassettes: $19.95 each The Scleroderma Video Series is a collection of presentations made by some of the foremost Scleroderma experts in the United States, including Rheumatologists, Cardiologists, Surgeons, Dieticians, Occupational Therapists, Dermatologists, Psychologists, Researchers and more. Topics have included: Overview and causes of Scleroderma Scleroderma Therapies Raynauds Phenomenon Genetics ... Drug Interactions much more Among the speakers that appear within the Scleroderma Video series are eminent experts in the field, including: Philip Clements, MD Daniel Furst, MD Sergio Jimenez, MD Maureen Mayes, MD James Seibold, MD Fredrick Wigley, MD For a complete listing of available titles, please click here Since 1994, Starlight Productions has produced over 30 videos directly related to Scleroderma. As we continue to videotape new presentations, we revise our offerings so that topic duplication is avoided, and outdated presentations are removed. Scleroderma Information - More than our business Our involvement with Scleroderma began as a commercial shoot in 1994. A previous client who had employed us for another type of service happened to be a Scleroderma patient, and a Chapter President within the former United Scleroderma Foundation. She requested our services for their annual chapter medical workshop, and, liking the results, recommended us the National Foundation for the 1995 USF National Conference.

10. Irish Raynaud's And Scleroderma Society Information about the organization and the promotion of a greater understanding of these diseases and related conditions. Events, news, mail order products and links. http://www.mdimedia.com/irss/

11. The Scleroderma Society Offers support and information. Includes an introduction, news and a message board.Category Health Conditions and Diseases scleroderma......The scleroderma Society. http://www.sclerodermasociety.co.uk/

The Scleroderma Society The Scleroderma Society

12. Scleroderma Clinical Trials Consortium Information about this international organization which is dedicated to finding a better treatment Category Health Conditions and Diseases scleroderma......An international organization dedicated to finding better treatment for scleroderma. Areyou a scleroderma patient looking for support and information? http://www.sctc-online.org/

OMERACT C lick here for more information Are you a scleroderma patient looking for support and information? See our Links page What is scleroderma? Scleroderma Fact Sheet at The American College of Rheumatology website. Research study application click here updated 4/6/03 Contact webmaster for corrections.

13. Scleraderma Lung Study A research study into the treatment of pulmonary alveolitis with cyclophosphamide seeking patient volunteers. Brief details of this US study for patients and doctors. (May 2000) http://sclerodermalungstudy.medsch.ucla.edu/

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14. International Scleroderma Network (ISN) A major resource for medical and support information, with 200+ pages and 800+ links. Symptoms, treatments, clinical trials, and worldwide support group listings. http://www.sclero.org/index.html

ISN: How We Help ISN Representatives Join or Donate Search This Site The Web Scleroderma from A to Z Hope on Horizon Welcoming Email MEDICAL ... EMAIL We're dedicated to helping you find the comfort and/or information you need for dealing with scleroderma or related illnesses. Please feel free to email me at any time. Shelley Ensz, Webmaster The International Scleroderma Network (ISN) Now Available in 18 Languages: Bahasa Malaysia Chinese Deutsche (German) English ... Worldwide Support Groups International Scleroderma Network We network and empower our worldwide scleroderma community. The ISN's dynamic team of volunteers empower our worldwide scleroderma community by providing medical, support and public awareness information via our Scleroderma from A to Z website and print publications in many languages. We offer free web pages website listings , and special events promotion for scleroderma organizations in all countries and languages.

15. Our Research Program The scleroderma Foundation 1999 Research Funding Program anticipates funding upto ten oneyear grants and ten two-year grants depending upon the quality of http://www.scleroderma.org/research.html

Research Program JOIN US! What Is Scleroderma? Get a Free Info Packet! Visit Our Store ... Links Page Scleroderma Foundation Research Funding Program Guidelines for Submission, Review, and Awarding of Research Grants Types of Proposals Solicited Budgets Timetable Review Process ... Restrictions A. Types of Proposals Solicited The Scleroderma Foundation Research Funding Program is currently accepting proposals for research grants related to scleroderma. Each application should have the quality of an NIH proposal. Projects of investigators new to the field of scleroderma are preferred, although studies in new directions by established researchers will be considered. B. Budgets Budgets for up to, but not exceeding, $75,000 for a one-year award or $150,000 for a two-year award are acceptable. Principal or co-investigator salaries may be funded for no more than $10,000 upon evidence of the supporting institution's matching this amount. Salaries for support personnel or current research post-doctoral fellows engaged in the project may be requested. The Scleroderma Foundation Research Funding Program allows eight percent of proposal budgets to be allocated towards overhead.

16. Scleroderma Read the posts or post a message for those who have or who are interested in this disorder.Category Health Conditions and Diseases scleroderma......A message board where people living with scleroderma can cometo discuss issue that we deal with on a daily basis. http://pub59.ezboard.com/fsclerodermadiscussionboardfrm1

"); else document.write(""); // > Scleroderma Discussion Board > Scleroderma Invite Friends! Login Register Your Free Account Search Help ... Need help logging in? 1 visitor in the last 15 minutes: Members - 1 Guest - Anonymous Page Topic Replies Last Comment Started By Finger ulcers 4/7/03 7:16:17 pm by: Brees mom kgreives HAS ANYONE HAD EYE PROBLEMS WITH SD 4/1/03 9:01:56 pm by: bozeman82 barbara h Bloated Stomach 3/27/03 5:37:52 pm by: Mike Hello I am back 3/27/03 5:04:04 am by: vikkiclarke2002 crunchie I have Scleroderma and gained weight is this normal? 3/17/03 7:03:20 pm by: vaiknessjoyaolcom Barbara h Raynauds Phenomena 3/17/03 2:58:07 am by: kashifabdullah420hotmailcom bojo Endoscopy... 3/16/03 7:35:44 pm by: Cindy AyaChan Social Security Disability Nightmare - It Can Happen to You! 2/18/03 10:43:19 am LJ FULLERTON We Must Take Healthcare Into Our Own Hands Now!!! 2/18/03 10:41:32 am LJ FULLERTON Help 2/13/03 3:32:26 pm by: AyaChan pamela any success story about SD?anyone actually cured? help.... 2/11/03 2:28:10 am by: ClairesBreakfast Prednisone Questions 2/7/03 3:24:32 pm Ayachan heredity/pleurisy 2/6/03 9:39:21 pm Diamond ANA Scleroderma 1/28/03 10:19:13 pm by: angelic 50 Larry S is there medication for legs and arms muscle weakness 1/25/03 3:20:04 pm by: shay shay Feet/Ankle swelling 1/21/03 5:06:34 pm by: barbarastrong AyaChan what are some meds that you are taking for Scleroderma?

17. International Scleroderma Network (ISN) A major resource for medical and support information, with 200+ pages and 800+ links. Symptoms, treatmen Category Health Conditions and Diseases scleroderma......A major worldwide resource for scleroderma medical and support information,with 800+ pages in 18 languages. International scleroderma Network. http://www.sclero.org/

ISN: How We Help ISN Representatives Join or Donate Search This Site The Web Scleroderma from A to Z Hope on Horizon Welcoming Email MEDICAL ... EMAIL We're dedicated to helping you find the comfort and/or information you need for dealing with scleroderma or related illnesses. Please feel free to email me at any time. Shelley Ensz, Webmaster The International Scleroderma Network (ISN) Now Available in 18 Languages: Bahasa Malaysia Chinese Deutsche (German) English ... Worldwide Support Groups International Scleroderma Network We network and empower our worldwide scleroderma community. The ISN's dynamic team of volunteers empower our worldwide scleroderma community by providing medical, support and public awareness information via our Scleroderma from A to Z website and print publications in many languages. We offer free web pages website listings , and special events promotion for scleroderma organizations in all countries and languages.

18. Scleroderma Webmaster's Association Directory The scleroderma Webmaster's Association makes it easy for people to find sclerodermainformation on the Internet! International scleroderma Network. http://www.sclero.org/support/swa/a-to-z.html

Int'l Scleroderma Network Scleroderma from A to Z Search This Site The Web Scleroderma Webmaster's Association: Sites to Surf! Special Thanks to Judy Tarro of SD World for SWA site design assistance and to Judy, Lynn and Syl for moderating SWAlist for webmasters. EMAIL We're dedicated to helping you find the comfort and/or information you need for dealing with scleroderma or related illnesses. Please feel free to email me at any time. Shelley Ensz, Webmaster Now Available in 18 Languages: Bahasa Malaysia Chinese Deutsche (German) English ... Worldwide Support Groups Scleroderma Sites to Surf! We make it easy to find scleroderma information worldwide. All our services are free, to members and visitors alike. Worldwide Support Free Web Page for Groups - Arabia (United Arab Emirates) - Africa - Australia - Belgium (Belgique) - Canada (Main Page) - China (Chinese) - Denmark - Deutsch (German) - Francais) (French) - Germany (Deutsch) - Greece (Greek) - Hungary (Magyarul) - India - Ireland - Israel (Hebrew) - Italy (Italiano) - Japan (Japanese) - Kannada (India) - Kenya (Africa) - Kiswahili (Kenya, Africa)

19. Pediatric Rheumatology Home Page A resource for families and physicians caring for children with arthritis, lupus, scleroderma, Kawasaki disease and other rheumatic diseases. http://www.goldscout.com/

All information is provided as a public service and no warranty is expressed or implied. KEY WORDS: arthritis scleroderma childhood arthritis dermatomyositis JRA juvenile rheumatoid arthritis Kawasaki Disease pediatric rheumatology polyarteritis nodosa SLE systemic lupus erythematosus vasculitis CLICK for Patient and Family Information CLICK for Books on Childhood Arthritis CLICK for Physicians' Information CLICK for Information on the Hospital for Special Surgery ... CLICK t o visit the Hospital for Special Surgery Rheumatology web site CLICK for Information on Dr. Lehman Click here if you want to make an appointment with Dr. Lehman CLICK to go to www.galaxy.einet.net PLEASE NOTE: It is not possible for Dr. Lehman to provide individual medical advice over the Internet. Every patient and family must find a physician they are comfortable with. If you are uncomfortable with your present physician you may get help in finding a new one from your local office of the Arthritis Foundation or other community organizations. This site provided by Thomas J. A. Lehman MD

20. RI Scleroderma Support Group Mutual support in Rhode Island and New England for scleroderma patients.Information, meetings, events. RI scleroderma Support Group. http://www.angelfire.com/ri/scleroderma/

The Rhode Island Scleroderma Support Group Serving Scleroderma Patients, Family, and Friends in Southern New England RISSG Scleroderma, a common but rarely-known disease Scleroderma . . . Is a chronic, auto-immune connective tissue disease generally classified as one of the rheumatic diseases. Is also commonly known as systemic sclerosis. Scleroderma, however, can be classified as systemic or localized. Symptoms may either be visible, as in the case when the skin is affected, or invisible when the internal organs are involved. Has symptoms that may range from very mild to potentially life threatening. Scleroderma is NOT . . . Contagious. Cancerous or malignant in any way. Inherited, as a general rule. NEW! February 24, 2003 Carole's Hope Garden for a Cure for Scleroderma (photos, graphics intensive, but worth it!) The Rhode Island Scleroderma Support Group (RISSG) meets on the fourth Wednesday of most months at 7:00 p.m. at the Day Treatment Room (first floor, handicapped accessible from side entrance), Roger Williams Medical Center, 825 Chalkstone Avenue, Providence, RI 02908, United States of America. The support group is not a medical clinic of any kind, but is simply for peer to peer information and assistance. For further information, please phone

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